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Heads up! The Sheffield Support Snood

Reading Time: 3 minutes During the second day of the symposium Association-funded researcher, Dr Chris McDermott, presented his highly anticipated research on a new neck support for people living with MND. Our healthcare research aims to lead to better symptom management and support for people living with MND. We know that neck weakness is an extremely distressing problem in…

Neurofilaments show promise as biomarker candidates for MND

Reading Time: 4 minutes Saturday afternoon saw the 25th International Symposium on ALS/MND expand from two to three sessions running in parallel. Times have changed from the early years of the meeting when sessions finished at lunchtime on the second day because there wasn’t enough stuff to talk about! Rather than flitting between three different lecture halls, I opted to…

Assistive technology and the power of voice

Reading Time: 4 minutes Our general election campaign for 2015 is featured around communication because we believe that nobody should have to lose their voice to MND. The afternoon session on Friday 5 December during the 25th International Symposium on ALS/MND also focussed on this topic. Around 80-95% of people living with MND will face communication problems as their speech…

Hairpins and MND

Reading Time: 2 minutes Over the summer I travelled over the Healy mountain Pass in Ireland – my memory of the drive is lots of hairpin bends. Fast forward six months and I’m reminded of those bends at the first day of the International Symposium – this time we’re talking about hairpins in RNA rather than roads! 

A taste of Brussels…

Reading Time: 3 minutes On 4 November, we welcomed two of our funded researchers to our offices in Northampton. Ruxandra Mutihac and Matt Gabel gave us a ‘taste’ of what’s to come for this year’s 25th International Symposium on ALS/MND, by speaking to us about their research. The symposium is the World’s largest MND-specific research conference and is now only two weeks away!