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On the third day of Christmas MND research gave to me: Three days of the symposium

Reading Time: < 1 minute “On the third day of Christmas MND research gives to you… THREE days of the 25th International symposium on ALS/MND” From 5 – 7 December 2014 the Association held its annual research conference, the 25th International Symposium on ALS/MND. This year, the event was held in Brussels, where just shy of 900 researchers attended to…

Posters, posters!

Reading Time: 5 minutes During the 25th International Symposium on ALS/MND there were two dedicated sessions for researchers to view over 300 posters. These posters varied from brain imaging to therapeutic strategies. But what is a poster? In this blog I’ll explain more about the session, as well as highlight some of my personal favourites. A biomedical or clinical…

Is infection making a bad situation worse?

Reading Time: 3 minutes I think Brian Dickie must have planned the early morning slot of the International Symposium in Brussels as a talk that would make delegates sit up and take note. Southampton based Professor Hugh Perry’s presentation certainly made me do that on Sunday morning, the last day of the meeting. His presentation was on the role…

SOD1 Stuff

Reading Time: 4 minutes With all the talk of new gene discoveries in recent years, the Sunday morning scientific session returned to the original discovery in 1993 that mutations in the SOD1 gene were responsible for around a fifth of familial (inherited) MND cases and 2-3% of all cases of the disease. Although much of our understanding of MND…

Is MND/FTD the same as FTD alone?

Reading Time: 3 minutes Association-funded researcher, Prof Julie Snowden from the University of Manchester was invited to present her research on MND and frontotemporal dementia at this year’s 25th International Symposium on ALS/MND. She is asking whether people living with MND and frontotemporal dementia develop a different form of dementia that is different to those with frontotemporal dementia alone.…

Gastrostomy in MND: Progress in ProGas

Reading Time: 3 minutes As well as biomedical research, we fund healthcare research to lead to better symptom management and support for people living with MND. On the final day of the symposium, Dr Stavroulakis from the Sheffield Institute for Translational Neuroscience (SITraN), presented results on his Association-funded research.  In some people living with MND, the muscles involved in…

Heads up! The Sheffield Support Snood

Reading Time: 3 minutes During the second day of the symposium Association-funded researcher, Dr Chris McDermott, presented his highly anticipated research on a new neck support for people living with MND. Our healthcare research aims to lead to better symptom management and support for people living with MND. We know that neck weakness is an extremely distressing problem in…

Assistive technology and the power of voice

Reading Time: 4 minutes Our general election campaign for 2015 is featured around communication because we believe that nobody should have to lose their voice to MND. The afternoon session on Friday 5 December during the 25th International Symposium on ALS/MND also focussed on this topic. Around 80-95% of people living with MND will face communication problems as their speech…