The Symp Awards 2019: Highlights from Perth

On top of all the sharing of research and networking, the International Symposium is a time to celebrate the huge achievements of individuals/teams that contribute to the ALS/MND community. There are too many outstanding and dedicated individuals to mention but some are recognised through several awards. Here we present the awards and the winners of the 30th International Symposium – warmest congratulations to all for their successes.Read More »

MND research around the world

worldmap annotated and marked

In the last decade, the MND Association has invested millions in research within the UK and across the world. We are a leader in the funding and promotion of cutting-edge MND research and, with over 30 years experience of identifying the most promising projects, we only fund and support scientific and medical research of the highest quality and relevance to MND.

And the great news is, we are not the only ones!

alliance_logo_landscape_rightThe International Alliance of ALS/MND Associations has 54 member institutions, in 40 countries around the world – from Mongolia to Mexico, Malta to Malaysia – who are supporting, funding, collaborating in and carrying out MND research, and/or offering much needed care and support to people with MND and their families.

All the institutions listed by the Alliance are shown on the map above. If you want to take a look at some of these, they are easy to access through the International Alliance website. Some of the websites are not in English but you can use the Google Translate Web tool to translate the entire site into English (or any other language).

So let’s take a whistle-stop tour and explore some of the latest research and support projects that other institutions around the world are involved in. The institutions I mention are shown on the map with a yellow pointer.Read More »

Co-ordinating the International Alliance of ALS/MND Associations

Rachel Patterson is the Co-ordinator for the International Alliance of ALS/MND Associations. Tomorrow is Global Awareness day and they are promoting ‘One Global Team… One goal for a world free from ALS/MND’. Here she writes about the role of the Alliance in creating a world free from MND.

My name is Rachel Patterson, and I am the Coordinator of the International Alliance of ALS/MND Associations.

As the only employee of our small not-for-profit organisation, I do a bit of everything, from administration to PR to marketing to communications to accounting. I am deeply committed to my position in part because I have personal experience with this disease; my mother is a neurologist who has dedicated her career to the care of people with MND, so I grew up understanding its devastating impact on individuals, families and communities.Read More »

The Allied Professionals Forum

MND Association Trustee, Julie Draper, attended the International Alliance of ALS/MND Association’s Allied Professional Forum (APF) yesterday. This one day event aimed at healthcare professionals had a number of inspiring talks; including one by Association-funded researcher Dr Christina Faull based at the Leicestershire and Rutland Hospice – LOROS.

Dr Christina Faull, Leicestershire and Rutland Hospice (LOROS)
Dr Christina Faull(right), Leicestershire and Rutland Hospice (LOROS)

Here Julie blogs about her experience:

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Looking forward to the Allied Professionals Forum

MND Association trustee, Julie Draper, will be arriving in Milan on Wednesday evening in preparation for the Allied Professionals Forum (APF), taking place on Thursday 5 December.

This one day meeting organised by the International Alliance of ALS/MND Associations focuses on the practice and experiences of healthcare professionals involved in the care and support of people living with MND.

You can read the programme for the day, as well as the abstracts, here.

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