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Withdrawing ventilation support at the request of the patient: the ethical, moral and legal issues

Reading Time: 3 minutes Motor neurone disease (MND) can cause weakness in the chest muscles involved in breathing. This leads to shortness of breath and symptoms including disturbed sleep and headaches. Ventilation support allows a person to breathe more efficiently and can also extend survival. The MND Association has funded research into respiratory management and ventilation support for people living…

Dr Chris McDermott talks about his research at our Annual Conference

Reading Time: 3 minutes This year’s Annual Conference research talk was given by Dr Chris McDermott and focused on his research at the Sheffield Institute for Translational Neuroscience (SiTraN). His talk, adequately named ‘Improving the care and evidence base for symptomatic care’, was a very personal and informative talk to all that attended. Dr McDermott gave a brief introduction…

Care Centre Directors Meeting

Reading Time: 2 minutes On Wednesday I attended the MND care centre directors meeting. This is where all of the care centre directors, care centre co-ordinators, our regional care development advisers (RCDA’s) and some members of the care development team at the MND Association come together from across the country  to share information and good practice. Topics discussed included the…