podcasts Archives

ALSUntangled – untangling the mysteries of alternative and off-label treatments

23 October 20199 July 2020Mandy Spencer2 Comments

Reading Time: 5 minutes There are literally thousands of websites on the internet that make claims about amazing alternative or off-label treatments (AOTs) and even cures for MND but with little or no scientific evidence to back these claims up. This presents a real problem for people living with the disease who may want to try them. Are they…

More information for families affected by inherited MND available online

2 August 20175 May 2022Belinda Cupid6 Comments

Reading Time: 4 minutes In April this year MND clinician-researchers Professors Martin Turner and Kevin Talbot at the University of Oxford organised an information day about the rare, inherited form of MND called ‘Families for the Treatment of Hereditary MND’ (FATHoM). The day was filmed and podcasts of the talks have recently become available. This article gives an overview…