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Author: Research Information Team

The MND Association’s vision is a world free from MND. Realising this vision means investing more in research, further developing partnerships with the research community, funding bodies and industry, while ensuring that advances in understanding and treating MND are communicated as quickly and effectively as possible.

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MND Research

Medical research charities and the research agenda – a strong collective voice for change

16 June 201419 April 2022

Reading Time: 3 minutesSally Thompson is the Association of Medical Research Charities (AMRC)’s Communications Officer. Here she blogs about the AMRC and the strong collective voice of medical

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Unproven treatments

ALSUntangled: Lessons Learned after 5 Years

16 June 201419 April 2022

Reading Time: 2 minutesDr Richard Bedlack is based at the Duke ALS Clinic in America. Back in 2009 he founded ALSUntangled and to start off MND Awareness week

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MND Research Research we fund

The role of the Research Accounts Officer

15 June 201419 April 2022

Reading Time: 2 minutesSylvia Bediako is the Research Accounts Officer at King’s College London. Here she explains about her job role and how she works with the MND

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Healthcare MND Research Research we fund

CALL-Me. Care Augmentation by Location-Linked Messaging

15 June 201419 April 2022

Reading Time: 3 minutesHappy Father’s day! If you’ve got your dad a smartphone, or another hi-tech gadget, then this blog is perfect for you! Prof Ammar Al-Chalabi is a Professor

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MND Research

Dr Jean Waters – my MND research blog

14 June 201419 April 2022

Reading Time: 3 minutesDr Jean Waters is a former trustee of the MND Association who is living with MND, here she blogs about what it was like being

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MND Research

MND Connect – more than just a helpline

13 June 201419 April 2022

Reading Time: 2 minutesScott Maloney is the Association’s MND Connect Team Leader. Following Alun’s volunteering roles, Scott explains more about MND Connect, how they can help, and how

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MND Research

The importance of MND research

13 June 201419 April 2022

Reading Time: 4 minutesAlun Owen is an Association Trustee (Chair elect). During Carers’ week week he writes about how he got involved in the Association, as well as his

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MND Research Treatments

Spinal Muscular Atrophy – final stages of development of a treatment

12 June 201419 April 2022

Reading Time: 2 minutesIn the Sheffield Institute for Translational Neuroscience (SITraN), the gene therapy group led by Prof Mimoun Azzouz is approaching the final stages of preclinical development

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MND Research

The life of a DNA bank sample: the biobanking process

12 June 201419 April 2022

Reading Time: 5 minutesThe MND Association is custodian of the UK MND DNA Bank. Over 3,000 people with MND, carers and family members donated blood samples to the

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Causes and disease mechanisms

The UK MND DNA Bank 6 months on…

11 June 201420 April 2022

Reading Time: 5 minutesIt’s been six months since the UK MND DNA Bank (DNA Bank) opened its doors to researchers around the world, so what has been happening to

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