Dysphagia and nutritional management: Highlights from Perth

This blog is part of the ‘Highlights from Perth’ collection of articles, where you can read about the content of some of the talks and posters presented at the 30th International Symposium on ALS/MND in Perth. Presentations have a code beginning with ‘C’ followed by a number (e.g. C50) to help locate the specific abstract in the official abstract book.

People with MND may experience difficulties with chewing and swallowing (dysphagia), problems with hand and arm control, reduced mobility and fatigue, which can make the effort of eating and drinking tiring. Dysphagia can affect around 85% of people with MND at some point throughout their disease progression. This is due to a weakening of the muscles in the mouth and throat, making it harder to eat and drink. Some people with MND choose to have a gastrostomy – a surgical opening through the abdomen into the stomach. This allows tube feeding – a way of passing specially prepared food and fluids straight into the stomach. Adapting nutritional intake and monitoring weight is important to help avoid unintentional weight loss that is associated with faster disease progression and shorter survival.

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Carer and family support: Highlights from Perth

This blog is part of the ‘Points from Perth’ collection of articles, where you can read about the content from some of the talks and posters presented at the 30th International Symposium on ALS/MND in Perth. All presentations have a code beginning with ‘C’ followed by a number (e.g. C50). This will help you locate the specific abstract mentioned throughout the post in the official abstract book.

Written by Rachel Boothman

The impact of caring for people with MND was the focus of several presentations in Session 5B at the Symposium.Read More »

The Symp Awards 2019: Highlights from Perth

On top of all the sharing of research and networking, the International Symposium is a time to celebrate the huge achievements of individuals/teams that contribute to the ALS/MND community. There are too many outstanding and dedicated individuals to mention but some are recognised through several awards. Here we present the awards and the winners of the 30th International Symposium – warmest congratulations to all for their successes.Read More »

Clinical Trials (Part 2) – Posters: Highlights from Perth

This blog is part of the ‘Highlights from Perth’ collection of articles, where you can read about the content of some of the talks and posters presented at the 30th International Symposium on ALS/MND in Perth.

With this years International Symposium on ALS/MND now behind us, it is time to reflect on some of the news that was presented by researchers.

Researchers are invited to present their work as either a platform (oral) presentation or as a poster. Results and updates from several clinical trials of potential new treatments for MND were presented as posters, and some of these have also found their way into various online news articles. This blog will look at some of these results and their potential as new treatments for MND.Read More »

Clinical Trials (Part 1) – Platform Presentations: Highlights from Perth

This blog is part of the ‘Highlights from Perth’ collection of articles, where you can read about the content of some of the talks and posters presented at the 30th International Symposium on ALS/MND. All presentations have a code beginning with ‘C’ followed by a number (e.g. C50). This will help you locate the specific abstract mentioned throughout the post in the official abstract book.

Researchers are invited to present their work as either a platform (oral) presentation or as a poster. Session 2B of the Symposium’s platform presentations looked at clinical trials. Here we summarise the session with four talks reporting concepts, updates and results of the trials being investigated. This includes the Healey ALS Platform Trial, Ibudilast, NurOwn, and Tofersen.

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Improving Care Practice: Highlights from Perth

This blog is part of the ‘Highlights from Perth’ collection of articles, where you can read about the content of some of the talks and posters presented at the 30th International Symposium on ALS/MND in Perth. All presentations have a code beginning with ‘C’ followed by a number (e.g. C50). This will help you locate the specific abstract mentioned throughout the post in the official abstract book.

Written by Rachel Boothman

While much is being done in the laboratory to find a cure for MND, the Symposium also provides an opportunity to share work aimed at improving care and support.Read More »

Highlighting MND researchers of the future – part 2

Last week saw the culmination of 12-months of planning as the 30th International Symposium on ALS/MND took place in Perth, Australia. The Symposium brings together the brightest minds from the MND research and healthcare communities. With 100 oral presentations, and over 420 posters, the Symposium is an opportunity for around 1,000 researchers and healthcare professionals to share new understanding of the disease, and is the premier event in the MND research calendar for discussion on the latest advances in research and clinical management.

andrewBefore the Symposium, the Research Information team invited two early career researchers, who both presented a poster at this year’s event, into our offices to talk about their work and why the Symposium is important to them.

We thought we would share this with you, and this is the second of two blog articles highlighting MND researchers of the future – introducing Andrew Tosolini.Read More »

Highlighting the MND researchers of the future – part 1

This week sees the start of the 30th International Symposium on ALS/MND in Perth, Australia. The Symposium brings together the brightest minds from the MND research and healthcare communities. With 110 oral presentations, and over 420 posters, the Symposium is an opportunity for around 1,000 researchers and healthcare professionals to share new understanding of the disease, and is the premier event in the MND research calendar for discussion on the latest advances in research and clinical management.

tobiasBefore the Symposium, the Research Information team invited two early career researchers, who are both presenting a poster at this year’s event, into our offices to talk about their work and why the Symposium is important to them.

We thought we would share this with you, and this is the first of two blog articles highlighting MND researchers of the future – introducing Tobias Moll.Read More »