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Students support MND research awareness with a conference

Students support MND research awareness with a conference

Reading Time: 5 minutes Soon after 8 medical students at the University of Southampton volunteered for the Motor Neurone Disease Association (with their local Southampton and Winchester branch) and created an MND Association MedSoc group at the University, they decided to organise an MND conference in February 2020 to raise interest amongst medical students and other healthcare professionals. Among…

TUDCA-ALS has started recruiting in the UK

TUDCA-ALS has started recruiting in the UK

Reading Time: 3 minutes TUDCA-ALS is a European Consortium (funded by the European Commission under the Horizon 2020 grant) involving top researchers from seven countries across Europe (see Figure 1). The Consortium aims to find a new treatment to slow down the progression of MND/ALS by conducting a clinical trial to investigate the safety and efficacy (effectiveness) of Tauroursodeoxycholic…

Our Visit to a Brain Bank

Reading Time: 4 minutes Brain banks are a vital resource in MND research. The MRC London Neurodegenerative Diseases Brain Bank was established in 1989. It is part of King’s College London and King’s College Hospital, and is part-funded by the Medical Research Council (MRC). After 18 months of planning, the bank has recently relocated into a bright terracotta building, fit…

AMBRoSIA – our biggest ever research project

Reading Time: 3 minutes The AMBRoSIA (A Multicentre Biomarker Resource Strategy In ALS) project is our biggest, most ambitious research undertaking to date. The project funding began in August, closely followed by being the focus of this month’s ‘Make Your Mark’ fundraising appeal. Here we explain more about what this flagship project is all about.

TONiC: Creating a quality of life ‘toolkit’ for MND

Reading Time: 2 minutes The MND Association funds several healthcare research projects that aim to improve care and symptom management for people living with MND. One such project is TONiC, which is examining factors that influence quality of life in patients with neurological conditions, including MND. So what is TONiC? The Trajectories of Outcome in Neurological Conditions (TONiC) study…

Heading in the right direction: Sheffield Support Snood update

Reading Time: 3 minutes Update (February 2017): All sites are now closed and not recruiting for participants. If you would like to be added to a waiting list for the Sheffield Support Snood, please contact Lise Sproson. We are funding, together with the NIHR i4i (National Institute for Heath Research invention for innovation) programme, a research team in Sheffield who have developed a new type…