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Qualitative research in MND: navigating challenges for participants and researchers

Qualitative research in MND: navigating challenges for participants and researchers

Reading Time: 3 minutes Jade and Liam are researchers at Sheffield Institute for Translational Neuroscience, University of Sheffield. Liam’s work aims to improve healthcare services through technology by involving people with MND in their development. Jade is interested in using research to better understand the issues and implications around genetic forms of MND and to support people to navigate decisions…

Improving the management of cough and secretion problems in MND

Improving the management of cough and secretion problems in MND

Reading Time: 3 minutes My name is Charlotte and I am a specialist physiotherapist who has worked within the field of MND and neuromuscular disease for many years. Prior to starting my PhD, I worked as the lead physiotherapist on the Neuromuscular Complex Care Centre (NMCCC) at the National Hospital for Neurology and Neurosurgery, part of UCL centre for neuromuscular diseases in London.

MND EnCouRage UK: “One of the early career researchers may hold the cure in their hands. They just don’t know it yet.”

MND EnCouRage UK: “One of the early career researchers may hold the cure in their hands. They just don’t know it yet.”

Reading Time: 6 minutes To fight motor neurone disease, we need a steady stream of enthusiastic and passionate scientists who can bring new ideas and push boundaries. Often, we talk of MND research as a puzzle, with each new piece of research adding to the bigger picture. The scientists just beginning their careers, known as early career researchers, could…

Keeping MND-SMART moving

Keeping MND-SMART moving

Reading Time: 5 minutes The current pace of clinical trials means that there are now more trials testing potential drugs for MND in the UK than ever before. One of these trials is MND-SMART which is designed to run for several years and give more people with the disease a chance to take part in a trial. The MND…

MAGNET: A new MND clinical platform trial now recruiting in the UK

MAGNET: A new MND clinical platform trial now recruiting in the UK

Reading Time: 5 minutes The pace of MND research continues to increase, with more clinical trials underway in the UK, over the last year, than ever before. Adding to this momentum, the clinical platform trial MAGNET (Multi-arm, Adaptive, Group-sequential trial NETwork)has just opened to recruitment in the UK.

Over the last several decades, there have been over 140 clinical trials for MND and unfortunately most of these have not led to effective treatments. More recently, clinical trial design has become more innovative, including the use of platform trials. MAGNET is a platform trial which aims to accelerate the development of new potential treatments for MND by testing multiple drugs simultaneously.