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Spotlight on the ‘International’ Symposium experience

Spotlight on the ‘International’ Symposium experience

Reading Time: 4 minutes We recently announced that following the success of our first virtual International Symposium on ALS/MND (the largest medical and scientific conference specific to MND/ALS) last year and the ongoing challenges caused by the global pandemic, the MND Association’s 32nd Symposium in December 2021 will be held online. As we head towards our Symposium this year,…

Star Cells dance and film event increases MND research awareness

Star Cells dance and film event increases MND research awareness

Reading Time: 3 minutes We were delighted to be invited to take part in ‘Star Cells’, a science-inspired performance art project in support of the Motor Neurone Disease Association, one of the events held last week to mark Global MND Awareness Day on 21 June. Inspired by the exciting and ground-breaking research into neuroscience taking place at the Francis…

Understanding family experiences of inherited MND: developing a new web resource on Healthtalk.org

Understanding family experiences of inherited MND: developing a new web resource on Healthtalk.org

Reading Time: 4 minutes Guest researcher blog post written by Jade Howard. Hello, my name is Jade Howard and I am a second year PhD student from The Health Services Research Unit at the University of Aberdeen. I am working on a study of families’ experiences of inherited forms of MND, which affect around 5-10% of people with the…

Students support MND research awareness with a conference

Students support MND research awareness with a conference

Reading Time: 5 minutes Soon after 8 medical students at the University of Southampton volunteered for the Motor Neurone Disease Association (with their local Southampton and Winchester branch) and created an MND Association MedSoc group at the University, they decided to organise an MND conference in February 2020 to raise interest amongst medical students and other healthcare professionals. Among…

TUDCA-ALS has started recruiting in the UK

TUDCA-ALS has started recruiting in the UK

Reading Time: 3 minutes TUDCA-ALS is a European Consortium (funded by the European Commission under the Horizon 2020 grant) involving top researchers from seven countries across Europe (see Figure 1). The Consortium aims to find a new treatment to slow down the progression of MND/ALS by conducting a clinical trial to investigate the safety and efficacy (effectiveness) of Tauroursodeoxycholic…

Our Visit to a Brain Bank

Reading Time: 4 minutes Brain banks are a vital resource in MND research. The MRC London Neurodegenerative Diseases Brain Bank was established in 1989. It is part of King’s College London and King’s College Hospital, and is part-funded by the Medical Research Council (MRC). After 18 months of planning, the bank has recently relocated into a bright terracotta building, fit…