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MAGNET: A new MND clinical platform trial now recruiting in the UK

1 June 20231 June 2023Charlotte RoyLeave a comment

Reading Time: 5 minutes The pace of MND research continues to increase, with more clinical trials underway in the UK, over the last year, than ever before. Adding to this momentum, the clinical platform trial MAGNET (Multi-arm, Adaptive, Group-sequential trial NETwork)has just opened to recruitment in the UK.

Over the last several decades, there have been over 140 clinical trials for MND and unfortunately most of these have not led to effective treatments. More recently, clinical trial design has become more innovative, including the use of platform trials. MAGNET is a platform trial which aims to accelerate the development of new potential treatments for MND by testing multiple drugs simultaneously.

MND clinical trial updates to keep an eye out for in 2023- part 2

7 February 20237 February 2023Eleanor Green

Reading Time: 5 minutes Last year was a really exciting year for MND clinical trials, with more trials recruiting in the UK than ever before, some promising results being released, and some drugs being approved by certain regulatory authorities. We hope that the momentum will continue this year and want to highlight just some of the updates we are…

MND clinical trial updates to keep an eye out for in 2023- part 1

2 February 202331 March 2023Eleanor Green

Reading Time: 4 minutes Last year was a really exciting year for MND clinical trials, with more trials recruiting in the UK than ever before, some promising results being released, and some drugs being approved by certain regulatory authorities. We hope that the momentum will continue this year and want to highlight just some of the updates we are…

Behind the research… The COMMEND Project

18 January 202326 January 2023Charlotte Roy

Reading Time: 3 minutes When you think of scientific research most people will immediately imagine a laboratory with scientists in white lab coats, however MND research takes many forms. As well as research that looks for effective treatments, it is also important to investigate ways to improve the well-being of people living with MND and their carers/family members.

Dear diary… Using diaries to understand the challenges of MND

8 February 20228 February 2022Research Development Team

Reading Time: 4 minutes Guest researcher blog post written by Nicola Glennie. When you throw a pebble into a pond, the ripples caused by the initial splash can reach far and wide. A diagnosis of Motor Neurone Disease can be like this with the effects of the initial diagnosis reaching beyond the physical symptoms of the illness to other…

Spotlight on the ‘International’ Symposium experience

1 July 202130 May 2022Research Development Team

Reading Time: 4 minutes We recently announced that following the success of our first virtual International Symposium on ALS/MND (the largest medical and scientific conference specific to MND/ALS) last year and the ongoing challenges caused by the global pandemic, the MND Association’s 32nd Symposium in December 2021 will be held online. As we head towards our Symposium this year,…

Star Cells dance and film event increases MND research awareness

28 June 202128 June 2021Research Development Team

Reading Time: 3 minutes We were delighted to be invited to take part in ‘Star Cells’, a science-inspired performance art project in support of the Motor Neurone Disease Association, one of the events held last week to mark Global MND Awareness Day on 21 June. Inspired by the exciting and ground-breaking research into neuroscience taking place at the Francis…

Driving MND Research through our PhD studentships

22 June 202118 June 2021Research Development Team

Reading Time: 4 minutes What MND Association funding means to researchers – our PhD students Each year, MND Associations across the globe mark 21 June as a special day of recognition, acknowledging the impact that MND has on people around the world. MND is a global problem. It does not discriminate, and for every person diagnosed the effects of…

Driving MND research on Global MND Awareness Day

21 June 202123 June 2021Research Development Team

Reading Time: 6 minutes Each year, MND Associations across the globe marks 21 June as a special day of recognition, acknowledging the impact that MND has on people around the world. MND is a global problem. It does not discriminate, and for every person diagnosed the effects of the disease will be forever felt by their families and friends.…

Understanding family experiences of inherited MND: developing a new web resource on Healthtalk.org

7 October 20207 October 2020Research Development Team

Reading Time: 4 minutes Guest researcher blog post written by Jade Howard. Hello, my name is Jade Howard and I am a second year PhD student from The Health Services Research Unit at the University of Aberdeen. I am working on a study of families’ experiences of inherited forms of MND, which affect around 5-10% of people with the…