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TONiC: Creating a quality of life ‘toolkit’ for MND

Reading Time: 2 minutes The MND Association funds several healthcare research projects that aim to improve care and symptom management for people living with MND. One such project is TONiC, which is examining factors that influence quality of life in patients with neurological conditions, including MND. So what is TONiC? The Trajectories of Outcome in Neurological Conditions (TONiC) study…

Heading in the right direction: Sheffield Support Snood update

Reading Time: 3 minutes Update (February 2017): All sites are now closed and not recruiting for participants. If you would like to be added to a waiting list for the Sheffield Support Snood, please contact Lise Sproson. We are funding, together with the NIHR i4i (National Institute for Heath Research invention for innovation) programme, a research team in Sheffield who have developed a new type…

Raising the profile of Kennedy’s disease

Reading Time: 4 minutes Did you know the MND Association also supports people who have Kennedy’s disease? In May a new clinic specialising in Kennedy’s disease opened in London at the National Hospital for Neurology and Neurosurgery. To mark this big step in helping support and treat people with Kennedy’s disease, Katy Styles who campaigns on behalf of the Association, and whose husband Mark has…

On the tenth day of Christmas MND research gave to me: Ten research studies we helped promote in 2014

Reading Time: < 1 minute “On the tenth day of Christmas MND research gives to you… TEN research studies we helped promote and recruit for in 2014” Last year we helped promote and recruit people living with MND to take part in 10 different studies. From biomarker studies, to survey’s on the risks v benefits of new medicines, we covered…