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ALSUntangled – untangling the mysteries of alternative and off-label treatments

ALSUntangled – untangling the mysteries of alternative and off-label treatments

Reading Time: 5 minutes There are literally thousands of websites on the internet that make claims about amazing alternative or off-label treatments (AOTs) and even cures for MND but with little or no scientific evidence to back these claims up. This presents a real problem for people living with the disease who may want to try them. Are they…

Cannabis-based products for medicinal use

Reading Time: 7 minutes In November 2018 the Home Office released a draft Guideline scope for Cannabis-based products for medicinal use in which they announced that specialist doctors (like consultant neurologists) on the Special Register of the General Medical Council will be able to prescribe cannabis-based medicinal products to some patients. Before this, the only cannabis-based medicines licensed for…

Understanding more about GM604

Reading Time: 3 minutes The MND Association’s Director of Research, Brian Dickie explains more about ‘GM6’, also known as ‘GM604’, a drug in development by an American pharmaceutical company Genervon. The Association funds a wide range of research that leads to new understanding and treatments, which may one day, bring us closer to a cure for MND. We are hopeful…

Unproven treatments: Have you really got nothing to lose by trying it?

Reading Time: 4 minutes The only ‘proven’ treatment to slow the progression of MND is Riluzole. There are, however, many organisations offering expensive ‘unproven’ and ‘alternative’ treatments for MND. We have worked with the organisation Sense about Science to help produce their ‘I’ve got nothing to lose by trying it’ information booklet so that people living with MND can…

Blue-green algae called Spirulina investigated by ALSUntangled

Reading Time: 2 minutes An unproven treatment called ‘Spirulina’, which is a type of blue-green algae, has recently been investigated by ALSUntangled*. They concluded that there is no evidence that Spirulina is effective for treating MND. Their findings also suggest that it could be toxic to people with MND. In their investigative paper, which is free to download and…