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Understanding family experiences of inherited MND: developing a new web resource on Healthtalk.org

Understanding family experiences of inherited MND: developing a new web resource on Healthtalk.org

Reading Time: 4 minutes Guest researcher blog post written by Jade Howard. Hello, my name is Jade Howard and I am a second year PhD student from The Health Services Research Unit at the University of Aberdeen. I am working on a study of families’ experiences of inherited forms of MND, which affect around 5-10% of people with the…

Rapid development of the Telehealth in MND (TiM) Platform

Rapid development of the Telehealth in MND (TiM) Platform

Reading Time: 3 minutes Guest researcher blog post written by Liam Knox: My name is Liam Knox and I am a Postdoctoral Research Associate who has recently joined Dr Esther Hobson and Prof. Chris McDermott (consultant neurologists) on the Telehealth in Motor Neuron Disease, or ‘TiM’ for short, project at the Sheffield Institute for Translational Neuroscience (SITRaN).

Online tool to support CALM – Coping and Living with MND

Online tool to support CALM – Coping and Living with MND

Reading Time: 2 minutes Guest researcher blog post written by Cathryn Pinto: I am a PhD student at the University of Southampton and my PhD project (titled CALM – Coping and Living with MND) is about the experience of emotional distress and wellbeing among people with MND and their family. Cathryn’s PhD studentship is funded by the MND Association.

New gene therapy targeting C9orf72-ALS begins Phase 1 clinical trial in the UK

New gene therapy targeting C9orf72-ALS begins Phase 1 clinical trial in the UK

Reading Time: 2 minutes This article was written by Dr Keith Mayl and Dr Ahmad Al Khleifat of King’s College London. Researchers at King’s College Hospital, led by Professor Christopher Shaw, have embarked on the first gene therapy clinical trial for patients affected by a specific genetic form of ALS, the most common type of MND. ALS is a…