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The DiAMoND Study: a new decision aid for people with MND

The DiAMoND Study: a new decision aid for people with MND

Reading Time: 4 minutes Some people with MND experience severe swallowing difficulties and it is estimated that over 50% of those with MND are affected by malnutrition and weight loss due to this. These factors are thought to be associated with increased disability and shortened survival, which is why nutrition remains one of the main challenges surrounding disease management. For those with MND who have severe swallowing difficulties, one of the long-term nutritional support options is a gastrostomy (a feeding tube that is inserted directly into the stomach to deliver food, fluids and some medications).

Conversations with…4 international MND researchers

Conversations with…4 international MND researchers

Reading Time: 3 minutes Last week at the 33rd International Symposium on ALS/MND, we heard some exciting updates on a wide range of research happening all over the world. The pace of ALS/MND research has drastically increased over recent years and we now have a better understanding about the underlying biology of the disease which is crucial to being able to identify new potential drug targets.

Regaining control – why open conversation might help manage anxiety after diagnosis

Regaining control – why open conversation might help manage anxiety after diagnosis

Reading Time: 4 minutes Receiving a diagnosis of Motor Neurone Disease (MND) can often lead to people feeling that they are losing control within their lives. Researchers at the University of Stirling and the University of West of Scotland have recently published research which explores the experiences of people living with MND and the factors which may contribute towards…

Symposium Spotlight: Experience of a Researcher

Symposium Spotlight: Experience of a Researcher

Reading Time: 5 minutes With planning for the 33rd International Symposium in full swing, we are back chatting to Silverio Conte, Chief of International Relations at Associazione conSLAncio Onlus, about the experiences of last years Symposium and the research the association presented. Associazione conSLAncio Onlus, is an all-volunteer, multidisciplinary Italian ALS Association and you can learn more about them…