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Virtual Symposium: Lessons from COVID-19 Part 2 – Impact on palliative care

Virtual Symposium: Lessons from COVID-19 Part 2 – Impact on palliative care

Reading Time: 4 minutes This is the second in a series of three blog articles from Session 7 – Perspectives: Lessons from COVID-19 in which we heard from different speakers about how the COVID-19 pandemic has impacted their own experiences of clinical trials, research, and support within the MND community. A further blog, written by Bruce Virgo who is…

Understanding family experiences of inherited MND: developing a new web resource on Healthtalk.org

Understanding family experiences of inherited MND: developing a new web resource on Healthtalk.org

Reading Time: 4 minutes Guest researcher blog post written by Jade Howard. Hello, my name is Jade Howard and I am a second year PhD student from The Health Services Research Unit at the University of Aberdeen. I am working on a study of families’ experiences of inherited forms of MND, which affect around 5-10% of people with the…

Rapid development of the Telehealth in MND (TiM) Platform

Rapid development of the Telehealth in MND (TiM) Platform

Reading Time: 3 minutes Guest researcher blog post written by Liam Knox: My name is Liam Knox and I am a Postdoctoral Research Associate who has recently joined Dr Esther Hobson and Prof. Chris McDermott (consultant neurologists) on the Telehealth in Motor Neuron Disease, or ‘TiM’ for short, project at the Sheffield Institute for Translational Neuroscience (SITRaN).

Online tool to support CALM – Coping and Living with MND

Online tool to support CALM – Coping and Living with MND

Reading Time: 2 minutes Guest researcher blog post written by Cathryn Pinto: I am a PhD student at the University of Southampton and my PhD project (titled CALM – Coping and Living with MND) is about the experience of emotional distress and wellbeing among people with MND and their family. Cathryn’s PhD studentship is funded by the MND Association.