Close
Reuniting the MND community at the 34th International Symposium on ALS/MND

Reuniting the MND community at the 34th International Symposium on ALS/MND

Reading Time: 4 minutes After 3 years of online events, the MND research and healthcare community reunited in-person at the 34th International Symposium on ALS/MND in Basel, Switzerland! From 6 – 8 December 2023, we welcomed back over 1300 delegates, including researchers, health and social care professionals and people living with and affected by MND, becoming one of our…

Symposium Preview: Meet the Symposium Communications Ambassadors

Symposium Preview: Meet the Symposium Communications Ambassadors

Reading Time: 7 minutes Each year at the Symposium, there is a huge amount of research presented on a range of topics from across the globe. With the Symposium returning to an in-person event this year, we are keen to increase the number of updates we share for those not able to attend, including people living with and affected by MND.

To help us do this, we have launched a new Symposium Communications Ambassador Programme so we can bring more of the research from the Symposium to non-scientific audiences. This programme was open for applications from early career researchers working in MND, who were interested in helping us shine a light on MND research happening across the world. This year we have 5 early career researchers taking part in the Programme, who will gain experience and new skills in communicating research to different audiences. Before, during and after the Symposium our Ambassador’s will be helping us to share the latest research with the MND community.

Qualitative research in MND: navigating challenges for participants and researchers

Qualitative research in MND: navigating challenges for participants and researchers

Reading Time: 3 minutes Jade and Liam are researchers at Sheffield Institute for Translational Neuroscience, University of Sheffield. Liam’s work aims to improve healthcare services through technology by involving people with MND in their development. Jade is interested in using research to better understand the issues and implications around genetic forms of MND and to support people to navigate decisions…

Improving the management of cough and secretion problems in MND

Improving the management of cough and secretion problems in MND

Reading Time: 3 minutes My name is Charlotte and I am a specialist physiotherapist who has worked within the field of MND and neuromuscular disease for many years. Prior to starting my PhD, I worked as the lead physiotherapist on the Neuromuscular Complex Care Centre (NMCCC) at the National Hospital for Neurology and Neurosurgery, part of UCL centre for neuromuscular diseases in London.

The DiAMoND Study: a new decision aid for people with MND

The DiAMoND Study: a new decision aid for people with MND

Reading Time: 4 minutes Some people with MND experience severe swallowing difficulties and it is estimated that over 50% of those with MND are affected by malnutrition and weight loss due to this. These factors are thought to be associated with increased disability and shortened survival, which is why nutrition remains one of the main challenges surrounding disease management. For those with MND who have severe swallowing difficulties, one of the long-term nutritional support options is a gastrostomy (a feeding tube that is inserted directly into the stomach to deliver food, fluids and some medications).