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28 April 2022
Symposium Spotlight: CRISPR- the magic behind gene…
1 April 2022
A ‘wee molecule’: the tiny urinary biomarker…
30 March 2022
Symposium Spotlight: Biomarkers in MND – improving…
16 March 2022
Symposium Spotlight: A closer look at IMODALS…
9 March 2022
What a difference a year makes: on…
24 February 2022
New discovery reveals why mysterious genetic variant…
22 February 2022
How technology can play a role in…
18 February 2022
Symposium Spotlight: Lets talk about saliva
A ‘wee molecule’: the tiny urinary biomarker neopterin and its role in MND progression

A ‘wee molecule’: the tiny urinary biomarker neopterin and its role in MND progression

Reading Time: 6 minutes My name is Stephanie Shepheard, and I am a Research Associate in the Motor Neuron Disease & Neurotrophic Research Laboratory (MND&NR Lab), Flinders Health & Medicine Research Institute in the College of Medicine & Public Health at Flinders University, South Australia. I measure biological changes, or biomarkers, that may tell us something useful about motor…

Symposium Spotlight: Biomarkers in MND – improving drug development and clinical trial design

Symposium Spotlight: Biomarkers in MND – improving drug development and clinical trial design

Reading Time: 4 minutes Diagnosing disease faster, accurately predicting disease progression, assessing the ability of a new drug to reach its target – I think we’d all agree that these three things are essential requirements for treating all diseases. But how can we achieve this? The answer may lie in biomarkers. In his plenary talk at last year’s International…

What a difference a year makes: on entering the ALS research community 

What a difference a year makes: on entering the ALS research community 

Reading Time: 5 minutes This is a guest blog written by Danielle Boyce, DPA, MPH, Executive Director, the Robert Packard Center for ALS Research and Answer ALS Research Program; Assistant Professor, Johns Hopkins School of Medicine, Division of Neurology  If 2021 taught me anything, it is the difference that one year can make in the fight against motor neuron…

New discovery reveals why mysterious genetic variant impacts ALS severity

New discovery reveals why mysterious genetic variant impacts ALS severity

Reading Time: 4 minutes My name is Oscar Wilkins and I am a PhD student working with Professors Pietro Fratta (recipient of a MND Association Research Fellowship) and Jernej Ule. Recently, in collaboration with Sarah Hill and Michael Ward, a team led by PhD student Anna-Leigh Brown, postdoctoral researcher Matt Keuss and myself uncovered a promising new target for…

How technology can play a role in connecting with the people you love

How technology can play a role in connecting with the people you love

Reading Time: 4 minutes “Go set the world on fire!” This is how Steve Gleason, a former professional American football player who is now living with ALS, finished his talk to 1,500 delegates at the virtual 32nd International Symposium on ALS/MND last December. Whilst using his speech to inspire researchers, clinicians, and healthcare professionals to do even more in…