CAFS

The Combined Assessments for Function and Survival – CAFS ranks patients’ clinical outcomes based on survival time and change in the ALSFRS-R score. The worst outcome is assigned to the individual who dies first, and the best outcome is assigned to the one who survives with the least functional decline. The scores are then ranked and the mean rank score for each treatment group is calculated. A higher mean CAFS score indicates a better group outcome.

I work as a Senior Research Officer within the MND Association to communicate the latest updates in MND research across our platforms. Additionally, I manage the digital platforms and communications for the International Symposium on ALS/MND. I graduated with a master's degree in Neuroscience from Cardiff University in 2023. I have previously supported the awareness of Fragile X syndrome within the UK.