ALSFRS-R

ALS Functional Rating Scale – Revised is a rating scale used by doctors to assess progression and severity of MND. Twelve questions about specific motor functions such as dressing, eating, walking etc are scored by the patient with 0 meaning no function and 4 meaning full function.

I work as a Senior Research Officer within the MND Association to communicate the latest updates in MND research across our platforms. Additionally, I manage the digital platforms and communications for the International Symposium on ALS/MND. I graduated with a master's degree in Neuroscience from Cardiff University in 2023. I have previously supported the awareness of Fragile X syndrome within the UK.