Peter Bickley – my MND research blog

This week is Volunteering week and we’re celebrating volunteering on our MND Research blog for our ‘blog a day’. Peter Bickley is an MND Association trustee and member of our Biomedical Research Advisory Panel (BRAP). Here he blogs about his role as a voluntary Trustee and what it’s like to be part of BRAP.

Until 2001 I had never heard of MND. Then, after the usual delay and uncertainty, my father was diagnosed with this unfamiliar disease; he died in 2002. The MND Association did not feature prominently during his illness, not through want of trying but because he simply did not want to know; this is not unusual, it is understandable but having seen it in action I am sure it is mistaken. So the efforts of the MND Association at the time were appreciated by those of us around him and the Association came onto my radar as a charity to support which, in a modest way, I did.Read More »