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Year: 2022

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  • 2022
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Events MND Research News Research we fund

ENCALS 2022 highlights: award-winning research

7 July 20227 July 2022

Reading Time: 4 minutesEvery year at the European Network to Cure ALS (ENCALS) meeting, the Young Investigator award is presented to the brightest and best young scientist in

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Markers of Disease Progression MND Research Research we fund

Delving deeper into neurofilament light chain

24 June 20224 April 2025

Reading Time: 5 minutesThere is a desperate need for a biomarker for MND for both the diagnosis and demonstration of a biological effect as a result of a

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Markers of Disease Progression MND Research Models of MND Research we fund Treatments

Global MND Awareness Day- Celebrating Collaboration

21 June 202221 June 2022

Reading Time: 5 minutesEach year, the 21st of June marks Global MND Awareness Day and MND Charites and Associations across the world acknowledge the impact that MND has

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Events MND Research News

Behind the research… ENCALS 2022 Conference Highlights

17 June 202217 June 2022

Reading Time: < 1 minuteMembers of the research recently attended the 20th European Network for the Cure of Amyotrophic Lateral Sclerosis (ENCALS) meeting in Edinburgh, Scotland, on the 1-3rd of June

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DNA
Clinical Trials MND Research Treatments

VALOR Biogen’s Tofersen trial: a look at the open label extension data

10 June 202217 February 2023

Reading Time: 6 minutesUpdate 21/09/2022: The results of the VALOR trial and its open label extension were published in the New England Journal of Medicine. These results give

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32nd Symposium: Virtual Healthcare MND Research Symposium

Symposium Spotlight: Experience of a Researcher

8 June 20228 June 2022

Reading Time: 5 minutesWith planning for the 33rd International Symposium in full swing, we are back chatting to Silverio Conte, Chief of International Relations at Associazione conSLAncio Onlus,

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32nd Symposium: Virtual MND Research Models of MND

Symposium Spotlight: CRISPR- the magic behind gene editing in MND

28 April 202229 April 2022

Reading Time: 6 minutesAs part of our Symposium Spotlight series, we’re looking back on some of the research presented at the 32nd International Symposium on ALS/MND. This blog

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Clinical Trials MND Research News

12 MND clinical trial updates to keep an eye out for in 2022 – Part 2

13 April 202224 June 2022

Reading Time: 6 minutesThis year is set to be an exciting time for MND research, and we are especially hopeful that MND clinical trials will take centre stage

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Clinical Trials MND Research Treatments

12 MND clinical trial updates to keep an eye out for in 2022 – Part 1

7 April 202219 April 2022

Reading Time: 7 minutesLast month saw the two-year anniversary since the first COVID lockdown in England (the UK) which changed our lives forever – not least because of

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Markers of Disease Progression MND Research

A ‘wee molecule’: the tiny urinary biomarker neopterin and its role in MND progression

1 April 20227 April 2022

Reading Time: 6 minutesMy name is Stephanie Shepheard, and I am a Research Associate in the Motor Neuron Disease & Neurotrophic Research Laboratory (MND&NR Lab), Flinders Health &

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