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Category: Healthcare

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26th Symposium: Orlando 2015 Healthcare Symposium

Choices around invasive ventilation

13 December 201528 April 2022

Reading Time: 3 minutesMechanical ventilation for people with motor neurone disease (MND) is a sensitive and little discussed topic. Yesterday’s respiratory management session of the International Symposium on

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26th Symposium: Orlando 2015 Healthcare MND Research News Research we fund Symposium

Respiratory support: the big debate on Symposium day 2

13 December 201528 April 2022

Reading Time: 5 minutesDifferent ways to support breathing were the main focus of the second clinical session on day two of the Symposium. Researchers from two MND Association

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26th Symposium: Orlando 2015 Healthcare MND Research Symposium

Our wheelchair project – helping people with MND around the world

13 December 201528 April 2022

Reading Time: 2 minutesKaren Pearce, the MND Association’s Director of Care, blogs about presenting the Association’s wheelchair project at the Allied Professionals Forum, which happened prior to the

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26th Symposium: Orlando 2015 Healthcare Symposium

The Big Conversation: MND diagnosis and care

12 December 201528 April 2022

Reading Time: 3 minutesThe MND Association’s Director of Care (South), Karen Pearce, gives her thoughts on one of the clinical sessions on the first day of the Symposium.

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26th Symposium: Orlando 2015 Healthcare MND Research Symposium

The Cinderella symptom: Muscle cramps in MND

12 December 201528 April 2022

Reading Time: 3 minutesWhile muscle cramps are a very common symptom of motor neurone disease (MND) there is currently few effective ways of management and treatment. Even though

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Get involved with research Healthcare MND Research News Research we fund

Heading in the right direction: Sheffield Support Snood update

23 November 201528 April 2022

Reading Time: 3 minutesUpdate (February 2017): All sites are now closed and not recruiting for participants. If you would like to be added to a waiting list for

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Healthcare MND Research News Research we fund

Palliative Care Research – new funding available

27 October 201528 April 2022

Reading Time: 2 minutesToday an exciting announcement was made about three organisations working together to increase our knowledge on the best way to provide palliative and end of

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Healthcare Research we fund

Are there differences between FTD alone and FTD-MND?

10 October 201528 April 2022

Reading Time: 3 minutesThe last of our FTD awareness week blog posts is focussing on a healthcare project looking into FTD (frontotemporal dementia) and FTD-MND (FTD when combined with

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Healthcare MND Research News Research we fund

Withdrawing ventilation support at the request of the patient: the ethical, moral and legal issues

17 September 201528 April 2022

Reading Time: 3 minutesMotor neurone disease (MND) can cause weakness in the chest muscles involved in breathing. This leads to shortness of breath and symptoms including disturbed sleep

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Get involved with research Healthcare MND Research News Research we fund

Disappointing news for diaphragm pacing in MND

31 July 201528 April 2022

Reading Time: 5 minutesResults from the UK clinical trial of diaphragm pacing in MND/ALS (known as DiPALS) were published online today in the journal Lancet Neurology. DiPALS was

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