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Catch up on Symposium…focus on ‘clinical management’
Prof Jeffrey Rosenfeld opens the 28th International Symposium on ALS/MND in Boston

Catch up on Symposium…focus on ‘clinical management’

Reading Time: 6 minutes From abstracts to posters, pushpins to ribbons, it takes a whole year to get to this day – no, not Christmas, but the 28th International Symposium on ALS/MND. In this and the following ‘catch-up’ blog we will summarise what went on at the Symposium and where you can find out more information. To begin with,…

Choices around invasive ventilation

Reading Time: 3 minutes Mechanical ventilation for people with motor neurone disease (MND) is a sensitive and little discussed topic. Yesterday’s respiratory management session of the International Symposium on ALS/ MND began with several interesting and thought provoking presentations on the subject. Pia Dryer from Aarhus University Hospital in Denmark presented the results of a review of their respiratory service…

Withdrawing ventilation support at the request of the patient: the ethical, moral and legal issues

Reading Time: 3 minutes Motor neurone disease (MND) can cause weakness in the chest muscles involved in breathing. This leads to shortness of breath and symptoms including disturbed sleep and headaches. Ventilation support allows a person to breathe more efficiently and can also extend survival. The MND Association has funded research into respiratory management and ventilation support for people living…