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Tag: unproven treatments

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Clinical Trials MND Research Treatments Unproven treatments

ALSUntangled – untangling the mysteries of alternative and off-label treatments

23 October 20199 July 2020

Reading Time: 5 minutesThere are literally thousands of websites on the internet that make claims about amazing alternative or off-label treatments (AOTs) and even cures for MND but

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Unproven treatments

ALSUntangled: Lessons Learned after 5 Years

16 June 201419 April 2022

Reading Time: 2 minutesDr Richard Bedlack is based at the Duke ALS Clinic in America. Back in 2009 he founded ALSUntangled and to start off MND Awareness week

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MND Research News Unproven treatments

Unproven treatments: Have you really got nothing to lose by trying it?

16 September 201314 April 2022

Reading Time: 4 minutesThe only ‘proven’ treatment to slow the progression of MND is Riluzole. There are, however, many organisations offering expensive ‘unproven’ and ‘alternative’ treatments for MND.

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Unproven treatments

Warning of spam email offering an ‘electro medicine’

28 July 2011

Reading Time: 3 minutesWe are aware that a number of MND organisations, forums and people living with MND have received spam messages regarding a gentleman who claims that

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Unproven treatments

New unproven stem cell treatment via IV and mannitol causes concern

18 April 2011

Reading Time: 2 minutesWe have been made aware that there’s a new kid on the block in terms of unproven treatments, which is a new route of administration

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MND Research Treatments Unproven treatments

Information means informed choice

16 July 2010

Reading Time: 2 minutesAlternative treatments can be tempting if you have a disease like MND, for which conventional medicine can only offer one moderately effective drug.  Unfortunately this temptation is easily

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