The DiAMoND Study: a new decision aid for people with MND

The DiAMoND Study: a new decision aid for people with MND

Reading Time: 4 minutes Some people with MND experience severe swallowing difficulties and it is estimated that over 50% of those with MND are affected by malnutrition and weight loss due to this. These factors are thought to be associated with increased disability and shortened survival, which is why nutrition remains one of the main challenges surrounding disease management. For those with MND who have severe swallowing difficulties, one of the long-term nutritional support options is a gastrostomy (a feeding tube that is inserted directly into the stomach to deliver food, fluids and some medications).

Tackling weight loss in MND – from ProGas to PostGas

Reading Time: 2 minutes Swallowing problems are an incredibly common cause of malnutrition and weight loss in MND patients. To add to this, weight loss in MND is associated with shorter survival. This means managing swallowing problems effectively is crucial to ensuring people living with MND can have the best possible quality of life. Managing swallowing problems using gastrostomy…

ProGas study results on gastrostomy in MND published

Reading Time: 3 minutes Under the leadership of Dr Christopher McDermott, based at the Sheffield Institute for Translational Neuroscience (SITraN), research published today on 29 May 2015 in the Lancet Neurology highlights that better weight management in MND is key to survival. Following on from initial results presented at the 25th International Symposium on ALS/MND in December 2014, the…

Gastrostomy in MND: Progress in ProGas

Reading Time: 3 minutes As well as biomedical research, we fund healthcare research to lead to better symptom management and support for people living with MND. On the final day of the symposium, Dr Stavroulakis from the Sheffield Institute for Translational Neuroscience (SITraN), presented results on his Association-funded research.  In some people living with MND, the muscles involved in…