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Virtual Symposium: Lessons from COVID-19 Part 2 – Impact on palliative care

Virtual Symposium: Lessons from COVID-19 Part 2 – Impact on palliative care

Reading Time: 4 minutes This is the second in a series of three blog articles from Session 7 – Perspectives: Lessons from COVID-19 in which we heard from different speakers about how the COVID-19 pandemic has impacted their own experiences of clinical trials, research, and support within the MND community. A further blog, written by Bruce Virgo who is…

Is frontotemporal dementia different when found with MND?

Reading Time: 2 minutes Some people with MND develop an increasingly recognised form of dementia, known as frontotemporal dementia  or FTD (for more information visit http://www.ftdtalk.org/). The main symptoms of FTD include alterations in decision making, behaviour and difficulty with language. The relationship between MND and FTD is not well understood. Prof Julie Snowden and PhD student Jennie Saxon at…

CALL-Me. Care Augmentation by Location-Linked Messaging

Reading Time: 3 minutes Happy Father’s day! If you’ve got your dad a smartphone, or another hi-tech gadget, then this blog is perfect for you! Prof Ammar Al-Chalabi is a Professor of Neurology and Complex Disease Genetics at King’s College London. He is also Director of the King’s MND Care and Research Centre in London. Here he blogs about his Association-funded research…

One week on – Reflections on my first experience of the International Symposium on ALS/MND

Reading Time: 2 minutes Our recent blog articles describe lots of fascinating science and the progress in the care and treatment of MND/ALS that was presented at the symposium.  Personally, another really positive aspect was the opportunity to meet some of the researchers face-to-face. This included several senior scientists and clinicians whose work we support, some of whom gave lectures…

Updating healthcare professionals on MND research

Reading Time: 2 minutes On Tuesday this week I drove up to Burton-on-Trent to give a talk at a study event for healthcare professionals who are involved in supporting people living with MND. The event was organised by one of my colleagues Jackie Dornford-May, the regional care development adviser for the area. There were two speakers at the event, myself and…