On the tenth day of Christmas MND research gave to me: Ten research studies we helped promote in 2014

“On the tenth day of Christmas MND research gives to you… TEN research studies we helped promote and recruit for in 2014”

IMG_2041Last year we helped promote and recruit people living with MND to take part in 10 different studies.

From biomarker studies, to survey’s on the risks v benefits of new medicines, we covered a number of different opportunities for people living with MND to get involved in research!

The TONiC study and the ALS biomarker study are still recruiting and tissue donation is open all year round! To stay up to date on the latest opportunities to get involved in research you can visit our website or subscribe to our research specific newsletter.

Alternatively, if you are living with MND you can join our MND Research list. Should a research opportunity become available in your area we will then contact you with details, including how to take part. Find out more.

On the seventh day of Christmas MND research gave to me: Seven research strategy themes

“On the seventh day of Christmas MND research gives to you… our SEVEN research strategy themes”

It’s New Year’s eve, a time to look back and celebrate on 2014 and our MND research achievements. It’s also a time to look to the future; in 2015 we will be funding new MND research in line with our research strategy.

Our 2010-2015 research strategy focuses on seven key themes.

causes1) Identifying the causes of MND

The exact cause of the majority of cases of MND is still unknown. Therefore identifying the causes is our first step in understanding MND and developing future treatments.

In 2014 we identified two new inherited MND genes and also announced funding for the UK Whole Genome Sequencing project to better identify the rarer genetic factors involved in causing the disease. Read more.

models2) Create and validate new models

Once we identify a genetic cause of MND, we need to find out how this gene causes MND. Animal and cellular models help us to find out how the gene affects the motor neurones and how this causes disease in a complex animal system. Read More »

Just the TONiC for quality of life in MND

Following on from the two talks on genetic testing; the first day of the 24th International Symposium on ALS/MND continued with a number of high quality research talks on topics such as screening for cognitive change and RNA processing.

Miss Hikari Ando (The Walton Centre NHS Foundation Trust) presented her research on Friday 6 December 2013. Following on from a previous talk on quality of life she pitched her talk as ‘What people living with MND thought of quality of life’ and explained that ‘quality of life is not just something of physical decline’.

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