Skip to content
  • Facebook
  • X
  • Instagram
  • Email

MND Research Blog

Taking you behind the scenes of MND research

  • Home
  • About this blog
    • About us
    • How to use this blog
      • Comments policy
  • Blog Categories
    • Research we fund
    • Treatments
      • Clinical Trials
      • Unproven treatments
    • Causes and disease mechanisms
    • Markers of Disease Progression
    • Models of MND
    • Healthcare
    • Symposium
      • 35th Symposium: Montreal
      • 34th Symposium: Basel
      • 33rd Symposium: Virtual
      • 32nd Symposium: Virtual
  • Back to Basics
  • Glossary

Author: Research Information Team

The MND Association’s vision is a world free from MND. Realising this vision means investing more in research, further developing partnerships with the research community, funding bodies and industry, while ensuring that advances in understanding and treating MND are communicated as quickly and effectively as possible.

  • Home
  • Research Information Team
  • Page 13
Healthcare MND Research Research we fund

The MND Register of England, Wales and Northern Ireland

8 June 201629 April 2022

Reading Time: 2 minutesWhat is the MND Register? The MND Register is a major five year project that aims to collect and store information about every person living

Read More
Causes and disease mechanisms MND Research Research we fund

Using fruit flies to understand a genetic cause of MND

1 June 201629 April 2022

Reading Time: 2 minutesMistakes in a gene known as ALS5, or spatacsin, cause a rare form of inherited MND that develops at a much earlier age than most

Read More
MND Research News

Janine Kirby: My 20 years in MND research

6 April 201628 April 2022

Reading Time: 4 minutesJanine Kirby is a Non-Clinical Reader in Neurogenetics and is celebrating 20 years in motor neurone disease (MND) research this month. Here she tells us

Read More
26th Symposium: Orlando 2015 Healthcare MND Research Symposium

Our wheelchair project – helping people with MND around the world

13 December 201528 April 2022

Reading Time: 2 minutesKaren Pearce, the MND Association’s Director of Care, blogs about presenting the Association’s wheelchair project at the Allied Professionals Forum, which happened prior to the

Read More
26th Symposium: Orlando 2015 Healthcare Symposium

The Big Conversation: MND diagnosis and care

12 December 201528 April 2022

Reading Time: 3 minutesThe MND Association’s Director of Care (South), Karen Pearce, gives her thoughts on one of the clinical sessions on the first day of the Symposium.

Read More
Get involved with research MND Research

Using video messages to help leave a digital legacy

6 November 201528 April 2022

Reading Time: 3 minutesIn a guest blog, PhD student Oliver Clabburn tells us about his family’s experience of MND and his research interests. He also explains how you

Read More
Healthcare MND Research News Research we fund

Palliative Care Research – new funding available

27 October 201528 April 2022

Reading Time: 2 minutesToday an exciting announcement was made about three organisations working together to increase our knowledge on the best way to provide palliative and end of

Read More
MND Research News

How MND research happens: Manchester Science Festival

22 October 201528 April 2022

Reading Time: 3 minutesOn Tuesday, we posted news of the two MND Awareness engagement events taking place in Manchester during the Manchester Science Festival (on 25 and 31

Read More
News

Movement Making in Manchester

20 October 201528 April 2022

Reading Time: 3 minutesManchester this half term will be the showcase for two MND awareness events we’ve been working on with Dr Emma Hodson-Tole and Dr Rickie Patani.

Read More
Get involved with research Healthcare MND Research News Research we fund

Disappointing news for diaphragm pacing in MND

31 July 201528 April 2022

Reading Time: 5 minutesResults from the UK clinical trial of diaphragm pacing in MND/ALS (known as DiPALS) were published online today in the journal Lancet Neurology. DiPALS was

Read More

Posts pagination

Previous 1 … 12 13 14 … 20 Next

Follow us on Twitter/X

Follow @mndresearch

Useful Links

  • MND Association Website
  • International Symposium
  • MND Clinical Studies Group

The official blog of the

Copyright © 2025 MND Research Blog - MND Association. All rights reserved. Registered Charity no. 294354