Reading Time: 2 minutesMistakes in a gene known as ALS5, or spatacsin, cause a rare form of inherited MND that develops at a much earlier age than most
Author: Research Information Team
The MND Association’s vision is a world free from MND. Realising this vision means investing more in research, further developing partnerships with the research community, funding bodies and industry, while ensuring that advances in understanding and treating MND are communicated as quickly and effectively as possible.
Reading Time: 4 minutesJanine Kirby is a Non-Clinical Reader in Neurogenetics and is celebrating 20 years in motor neurone disease (MND) research this month. Here she tells us
Reading Time: 2 minutesKaren Pearce, the MND Association’s Director of Care, blogs about presenting the Association’s wheelchair project at the Allied Professionals Forum, which happened prior to the
Reading Time: 3 minutesThe MND Association’s Director of Care (South), Karen Pearce, gives her thoughts on one of the clinical sessions on the first day of the Symposium.
Reading Time: 3 minutesIn a guest blog, PhD student Oliver Clabburn tells us about his family’s experience of MND and his research interests. He also explains how you
Reading Time: 2 minutesToday an exciting announcement was made about three organisations working together to increase our knowledge on the best way to provide palliative and end of
Reading Time: 3 minutesOn Tuesday, we posted news of the two MND Awareness engagement events taking place in Manchester during the Manchester Science Festival (on 25 and 31
Reading Time: 3 minutesManchester this half term will be the showcase for two MND awareness events we’ve been working on with Dr Emma Hodson-Tole and Dr Rickie Patani.
Reading Time: 5 minutesResults from the UK clinical trial of diaphragm pacing in MND/ALS (known as DiPALS) were published online today in the journal Lancet Neurology. DiPALS was
Reading Time: 3 minutesAt present there is no diagnostic test for MND, and diagnosis is usually determined through clinical observations and by excluding other diseases. Because of this,