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Causes and disease mechanisms MND Research News

CYLD: New FTD and MND gene identified

7 April 202020 May 2020

Reading Time: 4 minutesDue to the collaboration, hard work and partnerships with people affected by motor neurone disease (MND) who generously take part in research, new pieces of

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30th Symposium: Perth 2019 MND Research News

Global Walk to D’feet MND: Highlights from Perth

2 January 202020 April 2022

Reading Time: 2 minutesWe’ve stepped into the New Year! As part of the 30th International Symposium, the first ever Global Walk to D’Feet MND took place to raise

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30th Symposium: Perth 2019 MND Research News

The Symp Awards 2019: Highlights from Perth

27 December 201920 May 2020

Reading Time: 5 minutesOn top of all the sharing of research and networking, the International Symposium is a time to celebrate the huge achievements of individuals/teams that contribute

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Clinical Trials Get involved with research MND Research News Research we fund

TUDCA-ALS has started recruiting in the UK

25 November 201928 August 2020

Reading Time: 3 minutesTUDCA-ALS is a European Consortium (funded by the European Commission under the Horizon 2020 grant) involving top researchers from seven countries across Europe (see Figure

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Markers of Disease Progression MND Research News

Kennedy’s Disease vs ALS: How muscle patterns can aid diagnosis and perform as a novel biomarker

5 September 201920 May 2020

Reading Time: 3 minutesResearchers from University College London led by Dr Pietro Fratta and Dr John Thornton found that muscle imaging can help distinguish Amyotrophic Lateral Sclerosis (ALS)

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Causes and disease mechanisms MND Research News

Could MND be treated by HIV drugs?

17 July 201920 May 2020

Reading Time: 4 minutesRecently published results from the open-label Lighthouse trial investigating safety of the drug Triumeq in people with MND revealed the treatment was safe and ready

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MND Research News

Energy and metabolism in MND cells answer the burning question

11 February 201920 April 2022

Reading Time: 5 minutesDespite the winter chill, there is a warm fuzzy feeling today with the news of a paper published in the journal ‘Brain’ by an MND

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Clinical Trials MND Research News Treatments Unproven treatments

Cannabis-based products for medicinal use

24 January 20199 July 2020

Reading Time: 7 minutesIn November 2018 the Home Office released a draft Guideline scope for Cannabis-based products for medicinal use in which they announced that specialist doctors (like

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29th Symposium: Glasgow 2018 Clinical Trials MND Research News Treatments

What’s the story with CuATSM

15 January 201920 May 2020

Reading Time: 5 minutesThere has recently been a flood of news stories on the outcomes of the Australian Phase 1 clinical trial investigating Copper ATSM (CuATSM) which is

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Clinical Trials MND Research News Treatments

Edaravone (Radicava) approved to treat MND in USA – what does this mean for people with MND in the UK

6 May 2017

Reading Time: 2 minutesOn Friday 5 May in America, the FDA, the organisation that approves drugs, announced that they’d granted a licence for the drug known as a

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