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Finding Purpose, Building Connections and Expanding Horizons: Reflections from the MND EnCouRage UK Conference

3 September 20253 September 2025 Research Information Team

Celebrating 10 years of our Non-Clinical Fellowships: looking to the present!

22 August 202522 August 2025 Eleanor Green

Celebrating 10 years of our Non-Clinical Fellowships: looking to the past!

20 August 202520 August 2025 Eleanor Green
Text reads: Celebrating 10 years of our non-clinical fellowship programme

Celebrating 10 years of our Non-Clinical Fellowships!

18 August 202522 August 2025 Eleanor Green

Making Gene Therapies Smarter and Safer

28 July 202528 July 2025 Gen Temple

MND EnCouRage UK 2025: Encouraging the future leaders of MND research

22 July 202523 July 2025 Eleanor Green
Causes and disease mechanisms MND Research

Do retroviruses contribute to the common, sporadic form of MND?

1 October 2015

Reading Time: 2 minutesNew research from scientists at the American National Institute of Neurological Disorders and Stroke in Bethesda suggest that they might. In a research paper published

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Get involved with research News

Raising the profile of Kennedy’s disease

28 September 201528 April 2022

Reading Time: 4 minutesDid you know the MND Association also supports people who have Kennedy’s disease? In May a new clinic specialising in Kennedy’s disease opened in London at the

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Healthcare MND Research News Research we fund

Withdrawing ventilation support at the request of the patient: the ethical, moral and legal issues

17 September 201528 April 2022

Reading Time: 3 minutesMotor neurone disease (MND) can cause weakness in the chest muscles involved in breathing. This leads to shortness of breath and symptoms including disturbed sleep

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MND Research Symposium

International Symposium on ALS/MND: Destination Orlando

28 August 201528 April 2022

Reading Time: 4 minutesThe August Bank holiday weekend is always greeted with a sigh of relief from the Research Development Team as it signals the sending off of

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Get involved with research Healthcare MND Research News Research we fund

Disappointing news for diaphragm pacing in MND

31 July 201528 April 2022

Reading Time: 5 minutesResults from the UK clinical trial of diaphragm pacing in MND/ALS (known as DiPALS) were published online today in the journal Lancet Neurology. DiPALS was

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Markers of Disease Progression MND Research Research we fund

Endomicroscopy – lighting the way for a diagnosis

29 July 201528 April 2022

Reading Time: 3 minutesAt present there is no diagnostic test for MND, and diagnosis is usually determined through clinical observations and by excluding other diseases. Because of this,

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Causes and disease mechanisms MND Research News

Formaldehyde exposure and increased risk of developing MND

15 July 201528 April 2022

Reading Time: 3 minutesA new study published yesterday in the Journal of Neurology, Neurosurgery and Psychiatry (JNNP) highlights the link between increased exposure to formaldehyde and an increased risk of

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Clinical Trials MND Research News Research we fund Treatments

MIROCALS: Episode MND

26 June 201520 April 2022

Reading Time: 5 minutesA clinical trial of Jedi proportions… The MND Association is backing a new clinical trial in MND, known as MIROCALS. This will be a joint

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MND Research News Research we fund

An insight into TDP-43 – An ENCALS 2015 meeting report

19 June 201520 April 2022

Reading Time: 3 minutesMedical Research Council (MRC)/ MND Association Lady Edith Wolfson Clinical Fellow, Dr Jakub Scaber, attended the European Network for a Cure of ALS (ENCALS) meeting

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Causes and disease mechanisms MND Research Research we fund

Oxidation Resistance 1 – tackling oxidative stress

10 June 201520 April 2022

Reading Time: 3 minutesMND Association-funded researchers, Prof Dame Kay Davies and Dr Peter Oliver, both based at the University of Oxford, have identified the oxidation resistance 1 (OXR1)

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