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Risk of death – clinical trial statistics explained

Risk of death – clinical trial statistics explained

Reading Time: 5 minutes "New drug reduces risk of death by 50%"

You may have seen this type of headline in news articles reporting on the outcome of clinical trials. Reading this headline can lead people to believe a potential drug is highly beneficial and has a real impact. However, it is important to delve a little deeper into the meaning of ‘risk of death’, the raw data behind it, and how it should be considered alongside other outcome measures of a trial to fully determine how effective a drug might be.

Reuniting the MND community at the 34th International Symposium on ALS/MND

Reuniting the MND community at the 34th International Symposium on ALS/MND

Reading Time: 4 minutes After 3 years of online events, the MND research and healthcare community reunited in-person at the 34th International Symposium on ALS/MND in Basel, Switzerland! From 6 – 8 December 2023, we welcomed back over 1300 delegates, including researchers, health and social care professionals and people living with and affected by MND, becoming one of our…

Symposium Preview: Meet the Symposium Communications Ambassadors

Symposium Preview: Meet the Symposium Communications Ambassadors

Reading Time: 7 minutes Each year at the Symposium, there is a huge amount of research presented on a range of topics from across the globe. With the Symposium returning to an in-person event this year, we are keen to increase the number of updates we share for those not able to attend, including people living with and affected by MND.

To help us do this, we have launched a new Symposium Communications Ambassador Programme so we can bring more of the research from the Symposium to non-scientific audiences. This programme was open for applications from early career researchers working in MND, who were interested in helping us shine a light on MND research happening across the world. This year we have 5 early career researchers taking part in the Programme, who will gain experience and new skills in communicating research to different audiences. Before, during and after the Symposium our Ambassador’s will be helping us to share the latest research with the MND community.

Symposium Preview: Meet the ALS/MND Plenary Speakers…Part 2

Symposium Preview: Meet the ALS/MND Plenary Speakers…Part 2

Reading Time: 7 minutes Each year we invite plenary speakers who are experts in their fields to provide an overview on topics across MND research and clinical practice. This year we have 14 plenary speakers talking about ALS/MND who will discuss a wide range of topics from genetics to tissue biomarkers to improving clinical practice. In this second blog we will be taking a closer look at some of our plenary speakers this year and sharing more about the topics they will be discussing.

The challenges of MND clinical trials

The challenges of MND clinical trials

Reading Time: 6 minutes On the 8 September 2023, members of the Research Development team at the MND Association attended the 4th UCL Queen Square Motor Neuron Disease Centre International Symposium. Leading international researchers were invited to speak about key areas of MND research, with a focus on translational research. We listened to talks on early laboratory research and…