Reading Time: 2 minutes This blog is part of our Symposium Blogathon series – where we are counting down to the 33rd International Symposium. Numbers in bold blue type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract. As a new feature of the Symposium Blogathon, we got in touch…
Reading Time: 5 minutes This blog is part of our Symposium Blogathon series – where we are counting down to the 33rd International Symposium. Numbers in bold blue type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract. Clinical trials are research studies in human volunteers that determine whether…
Reading Time: 5 minutes This blog is part of our Symposium Blogathon series – where we are counting down to the 33rd International Symposium. Numbers in bold blue type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract. Clinical trials are research studies in human volunteers that determine whether…
Reading Time: 5 minutes In this guest blog written by Harry Bowles and Sarah Opie-Martin from King’s College London they discuss their MND research poster which was presented at the European Network to Cure ALS (ENCALS) meeting in June 2022. Randomised, double blind trials are the gold standard During a clinical trial, a group of volunteers with ALS are…
Reading Time: 6 minutes Update 21/09/2022: The results of the VALOR trial and its open label extension were published in the New England Journal of Medicine. These results give mounting confidence that Tofersen is having both a biological and a beneficial effect in people living with SOD1 MND. You can read more about the results below. The Motor Neurone…
Reading Time: 6 minutes This year is set to be an exciting time for MND research, and we are especially hopeful that MND clinical trials will take centre stage in the coming months. During 2022 we are expecting new trials to begin recruitment in the UK, other trials to readout their results and decisions announced from authorising bodies for…
Reading Time: 7 minutes Last month saw the two-year anniversary since the first COVID lockdown in England (the UK) which changed our lives forever – not least because of the distress and disruption caused to all of us – including MND research and the ability to perform and complete clinical trials here in the UK and across the world.…
Reading Time: 6 minutes As the research team are starting to get stuck into planning our next International Symposium on ALS/MND we are taking a look back at some of the incredible ALS/MND research presented at the 2021 event. As part of our Symposium Spotlight series, we delve into a poster presentation which took a closer look at the…
Reading Time: 4 minutes Researchers at King’s College London led by Professor Christopher Shaw, are the first in Europe to embark on a clinical trial targeting a specific genetic form of ALS caused by mutations in the fused in sarcoma (FUS) gene. What is FUS-ALS? Mutations in FUS were first linked to ALS in 2009 by research led by…
Reading Time: 4 minutes This is blog number 21 in our ‘Symposium Blogathon’ – counting down to the 32nd International Symposium on ALS/MND. Numbers in bold green type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract (the page may take a minute to load). At present, the only…
