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Qualitative research in MND: navigating challenges for participants and researchers

Qualitative research in MND: navigating challenges for participants and researchers

Reading Time: 3 minutes Jade and Liam are researchers at Sheffield Institute for Translational Neuroscience, University of Sheffield. Liam’s work aims to improve healthcare services through technology by involving people with MND in their development. Jade is interested in using research to better understand the issues and implications around genetic forms of MND and to support people to navigate decisions…

Conversations with…4 international MND researchers

Conversations with…4 international MND researchers

Reading Time: 3 minutes Last week at the 33rd International Symposium on ALS/MND, we heard some exciting updates on a wide range of research happening all over the world. The pace of ALS/MND research has drastically increased over recent years and we now have a better understanding about the underlying biology of the disease which is crucial to being able to identify new potential drug targets.

TONiC: Creating a quality of life ‘toolkit’ for MND

Reading Time: 2 minutes The MND Association funds several healthcare research projects that aim to improve care and symptom management for people living with MND. One such project is TONiC, which is examining factors that influence quality of life in patients with neurological conditions, including MND. So what is TONiC? The Trajectories of Outcome in Neurological Conditions (TONiC) study…

ProGas study results on gastrostomy in MND published

Reading Time: 3 minutes Under the leadership of Dr Christopher McDermott, based at the Sheffield Institute for Translational Neuroscience (SITraN), research published today on 29 May 2015 in the Lancet Neurology highlights that better weight management in MND is key to survival. Following on from initial results presented at the 25th International Symposium on ALS/MND in December 2014, the…