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Cutting-edge MND research at The Francis Crick Institute

Cutting-edge MND research at The Francis Crick Institute

Reading Time: 5 minutes Building relationships with key research institutes across the UK is vital in pushing research forward in the fight against MND. As of 31 December 2023, we are funding 109 research projects across 19 UK Universities and research institutes. The MND Association has a long-standing relationship with University College London (UCL) and its researchers. This relationship…

A new way to detect faulty TDP-43 in MND

A new way to detect faulty TDP-43 in MND

Reading Time: 7 minutes Researchers from the University of Aberdeen and the University of Edinburgh have developed a new tool that could help to detect signs of MND in cells before symptoms of the disease start. This work was recently published and was previously presented at the 34th International Symposium in Basel by Dr Jenna Gregory. The new tool…

Cracking the genetic code in MND

Cracking the genetic code in MND

Reading Time: 7 minutes Hi, I’m Heather, a PhD student from King’s College London, and a Communications Ambassador for the 34th International Symposium on ALS/MND which was held in Basel last December. Over 1,300 attendees from around the world gathered to connect with researchers and people affected by MND and engage with the latest research presented in the platform presentation and poster sessions. In this blog post, I will be sharing several of my personal highlights of the symposium, which cover how differences in our genetic code can be explored to understand their effects on MND risk and progression.

Risk of death – clinical trial statistics explained

Risk of death – clinical trial statistics explained

Reading Time: 5 minutes "New drug reduces risk of death by 50%"

You may have seen this type of headline in news articles reporting on the outcome of clinical trials. Reading this headline can lead people to believe a potential drug is highly beneficial and has a real impact. However, it is important to delve a little deeper into the meaning of ‘risk of death’, the raw data behind it, and how it should be considered alongside other outcome measures of a trial to fully determine how effective a drug might be.

Is nerve injury related to symptom onset site in MND?

Is nerve injury related to symptom onset site in MND?

Reading Time: 4 minutes In our brains, specific areas control the movement of different body parts (see image below). As we know, MND is a complex disease with a lot of variation between individuals who are affected. For example, symptoms may start in different body parts for different individuals. Understanding why this happens may help us predict the disease onset site or progression across the body in the future.

How can technology and telemedicine play a role in MND care and research?

How can technology and telemedicine play a role in MND care and research?

Reading Time: 5 minutes Hi, my name is Avril Mc Tague. I am undertaking a Ph.D. at Trinity College, Dublin, Ireland as part of the Multidisciplinary Innovation and Research Advancing Neurological care in a Digital Age (MIRANDA) doctoral award programme. This is funded by the Health Research Board in Ireland. I was one of five symposium communication ambassadors at last year’s international symposium.