Reading Time: 6 minutesIt’s that time of year again when we’re counting down to the annual International Symposium on ALS/MND! This year marks the 35th Symposium, the largest scientific
Tag: tofersen
Reading Time: 5 minutesThe MND clinical trial landscape has grown vastly over the last decade and this has led to increased opportunities for people with MND to take
Reading Time: 7 minutesOn 25th April 2023 Tofersen (now known as Qalsody in the US), a treatment for SOD1 MND was approved by the Food and Drug Administration
Reading Time: 5 minutesLast year was a really exciting year for MND clinical trials, with more trials recruiting in the UK than ever before, some promising results being
Reading Time: 4 minutesLast year was a really exciting year for MND clinical trials, with more trials recruiting in the UK than ever before, some promising results being
Reading Time: 6 minutesIt has been suggested that there might be a pre-symptomatic stage of MND, where the disease is active and occurring within a person but no symptoms are showing. There is currently little research in this area and a lack of evidence of a pre-symptomatic stage of the disease. However, if it can be shown that there is a pre-symptomatic stage which can be measured, this could be very useful in helping people with MND to get treatment as early as possible. Dr Michael Benatar, from the University of Miami, has been looking into this by studying the development of MND and how the disease presents in people who have a high risk of developing it.
Reading Time: 6 minutesOver the last year ALS/MND clinical trials have taken centre stage, with more trials than ever opening for recruitment in the UK, the news of promising results from some trials and the approval of drugs by some regulatory authorities. With the year coming to an end, we thought we would roundup some recent clinical trial updates that were presented at the 33rd International Symposium on ALS/MND.
Reading Time: 6 minutesUpdate 21/09/2022: The results of the VALOR trial and its open label extension were published in the New England Journal of Medicine. These results give
Reading Time: 4 minutesThis blog is part of the ‘Highlights from Perth’ collection of articles, where you can read about the content of some of the talks and
Causes and disease mechanisms Clinical Trials Markers of Disease Progression MND Research Models of MND Research we fund Treatments
How animals are helping to improve our understanding of MND
Reading Time: 6 minutes‘From antibiotics and insulin to blood transfusions and treatments for cancer or HIV, virtually every medical achievement in the past century has depended directly or