This blog is part of our Symposium Blogathon series – where we are counting down to the 33rd International Symposium. Numbers in bold blue type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract.
As a new feature of the Symposium Blogathon, we got in touch with a variety of international researchers who will be presenting at the 33rd International Symposium on ALS/MND. We chatted about what they will be presenting and what they are most looking forward to at the Symposium this year.
Today, we hear from Danielle Boyce, from Johns Hopkins Packard Centre for ALS research. Many people living with ALS/MND, their family and caregivers have an interest in research and often want to be able to use their own experiences to help advocate for themselves and others living with the disease. Danielle’s research (TST03) focuses on understanding the level of basic research knowledge people living with neurodegenerative conditions, such as ALS/MND, their family and caregivers have and how engagement within the ALS/MND research community could improve this.
Listen below to find out more.
Danielle also presented her work at last year’s Symposium and was voted as the People’s Choice Poster award winner. The people’s choice award is chosen by those who attended the Symposium voting for their favourite poster.
Buoyed by her success, Danielle wrote a guest blog for us too!
RELATED TOPIC
Blog | 9 March 2022 | Research Team
What a difference a year makes: on entering the ALS research community
Make sure you come back after the Symposium to hear more from Danielle including some of the results of her work and what it means for people living with MND.
Danielle’s talks to look out for
Session 9 – Improving clinical endpoints in therapeutic trials for ALS – Dr Ruben Van Eijk (C24).
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Take a look at the schedule of blogs for November as we continue counting down to the 33rd International Symposium on ALS/MND with our Symposium Blogathon.
To listen to talks live, take part in the Q&As and visit the live poster sessions, register for the International Symposium now.
