Symposium Blogathon: Focus on… Danielle Boyce

Symposium Blogathon: Focus on… Danielle Boyce

Reading Time: 2 minutes

This blog is part of our Symposium Blogathon series – where we are counting down to the 33rd International Symposium. Numbers in bold blue type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract.

As a new feature of the Symposium Blogathon, we got in touch with a variety of international researchers who will be presenting at the 33rd International Symposium on ALS/MND. We chatted about what they will be presenting and what they are most looking forward to at the Symposium this year.

Today, we hear from Danielle Boyce, from Johns Hopkins Packard Centre for ALS research. Many people living with ALS/MND, their family and caregivers have an interest in research and often want to be able to use their own experiences to help advocate for themselves and others living with the disease. Danielle’s research (TST03) focuses on understanding the level of basic research knowledge people living with neurodegenerative conditions, such as ALS/MND, their family and caregivers have and how engagement within the ALS/MND research community could improve this.

Listen below to find out more.

Danielle also presented her work at last year’s Symposium and was voted as the People’s Choice Poster award winner. The people’s choice award is chosen by those who attended the Symposium voting for their favourite poster.

Buoyed by her success, Danielle wrote a guest blog for us too!

Blog | 9 March 2022 | Research Team
What a difference a year makes: on entering the ALS research community

Make sure you come back after the Symposium to hear more from Danielle including some of the results of her work and what it means for people living with MND.

Danielle’s talks to look out for

Session 9 – Improving clinical endpoints in therapeutic trials for ALS – Dr Ruben Van Eijk (C24).

Stay Informed

If you have come across this blog through the Symposium website, or a general search please subscribe (see top right-hand corner of page) and you’ll be notified every time we upload a new article.

You can follow our research account on Twitter. We tweet about up to the minute research and will be tweeting throughout the Symposium using the hashtag #alsmndsymp.

Take a look at the schedule of blogs for November as we continue counting down to the 33rd International Symposium on ALS/MND with our Symposium Blogathon.

To listen to talks live, take part in the Q&As and visit the live poster sessions, register for the International Symposium now.

The MND Association’s vision is a world free from MND. Realising this vision means investing more in research, further developing partnerships with the research community, funding bodies and industry, while ensuring that advances in understanding and treating MND are communicated as quickly and effectively as possible. Our Research Development team, composed of 11 members, work hard to achieve this. Principally, the Research Information team within this are involved in communication activities including this MND Research blog.