Reading Time: 7 minutes On 25th April 2023 Tofersen (now known as Qalsody in the US), a treatment for SOD1 MND was approved by the Food and Drug Administration
Reading Time: 4 minutes It is known that people with MND experience different symptoms, and these are not just movement related. People with MND can experience difficulty speaking, breathing
Reading Time: 4 minutes It is well known that more men are diagnosed with MND than women. It is not altogether clear exactly why this is the case and
Reading Time: 6 minutes Recent research, led by Professor Guillaume Hautbergue at the University of Sheffield, has found a potential new method of preventing nerve cell death in the
Reading Time: 4 minutes Some people with MND experience severe swallowing difficulties and it is estimated that over 50% of those with MND are affected by malnutrition and weight loss due to this. These factors are thought to be associated with increased disability and shortened survival, which is why nutrition remains one of the main challenges surrounding disease management. For those with MND who have severe swallowing difficulties, one of the long-term nutritional support options is a gastrostomy (a feeding tube that is inserted directly into the stomach to deliver food, fluids and some medications).
Reading Time: 5 minutes Research into MND has increased over recent years and we now have a greater understanding of what is happening within the body during the disease.
Reading Time: 2 minutes Researchers from King’s College London have recently completed a study looking into different variations (a change or mistake) within the SOD1 gene and found that understanding the position and type of change within the gene can help to predict onset and progression of the disease.
Reading Time: 4 minutes A recent paper published in Brain Communications has identified several lipid (fat-like) molecules that are elevated in MND, specifically amyotrophic lateral sclerosis (ALS) which is
Reading Time: 5 minutes 8 years ago, the International Day of Women and Girls in Science was created to improve gender equality in science and recognise the invaluable role
Reading Time: 5 minutes 8 years ago, the International Day of Women and Girls in Science was created to improve gender equality in science and recognise the invaluable role women play. Each year the world comes together to celebrate inspirational women of the past, present, and future. While women continue to be under-represented in science globally, the conversation of gender equality in science is much louder than it was.