Reading Time: 5 minutes There is a desperate need for a biomarker for MND for both the diagnosis and demonstration of a biological effect as a result of a potential treatment. Recent work funded by the MND Association and others has found strong evidence to suggest that using a potential biomarker known as blood neurofilament light chain in place…
Reading Time: 5 minutes Each year, the 21st of June marks Global MND Awareness Day and MND Charites and Associations across the world acknowledge the impact that MND has on everyone who is affected by the disease. This year, we would like to recognise the dedication and commitment of the MND community who give their time and knowledge to…
Reading Time: 6 minutes Update 21/09/2022: The results of the VALOR trial and its open label extension were published in the New England Journal of Medicine. These results give mounting confidence that Tofersen is having both a biological and a beneficial effect in people living with SOD1 MND. You can read more about the results below. The Motor Neurone…
Reading Time: 6 minutes My name is Stephanie Shepheard, and I am a Research Associate in the Motor Neuron Disease & Neurotrophic Research Laboratory (MND&NR Lab), Flinders Health & Medicine Research Institute in the College of Medicine & Public Health at Flinders University, South Australia. I measure biological changes, or biomarkers, that may tell us something useful about motor…
Reading Time: 6 minutes As the research team are starting to get stuck into planning our next International Symposium on ALS/MND we are taking a look back at some of the incredible ALS/MND research presented at the 2021 event. As part of our Symposium Spotlight series, we delve into a poster presentation which took a closer look at the…
Reading Time: 4 minutes This is blog number 20 in our ‘Symposium Blogathon’ – counting down to the 32nd International Symposium on ALS/MND. Numbers in bold green type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract (the page may take a minute to load). Clinical trials are research…
Reading Time: 5 minutes This is blog number 19 in our ‘Symposium Blogathon’ – counting down to the 32nd International Symposium on ALS/MND. Numbers in bold green type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract (the page may take a minute to load). Clinical trials are research…
Reading Time: 4 minutes This is blog number 18 in our ‘Symposium Blogathon’ – counting down to the 32nd International Symposium on ALS/MND. Numbers in bold green type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract (the page may take a minute to load). As we learn more…
Reading Time: 6 minutes This is blog number 14 in our ‘Symposium Blogathon’ – counting down to the 32nd International Symposium on ALS/MND. Numbers in bold green type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract (the page may take a minute to load). MND is difficult to…
Reading Time: 7 minutes This is blog number 13 in our ‘Symposium Blogathon’ – counting down to the 32nd International Symposium on ALS/MND. Numbers in bold green type correspond to the code in the abstract book. Click on the number to be redirected to the full abstract (the page may take a minute to load). You can also find…
