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Understanding family experiences of inherited MND: developing a new web resource on Healthtalk.org

Understanding family experiences of inherited MND: developing a new web resource on Healthtalk.org

Reading Time: 4 minutes Guest researcher blog post written by Jade Howard. Hello, my name is Jade Howard and I am a second year PhD student from The Health Services Research Unit at the University of Aberdeen. I am working on a study of families’ experiences of inherited forms of MND, which affect around 5-10% of people with the…

Studentship success – next steps for Matthew Nolan

Studentship success – next steps for Matthew Nolan

Reading Time: 5 minutes Guest researcher blog post written by Matthew Nolan. My name is Matthew, I’m currently a post-doctoral researcher at Massachusetts General Hospital and Harvard Medical School in the USA, supported by a Cullen Education and Research Young Investigator Award. Last year I finished my MND Association-funded PhD at the University of Oxford, where I was supervised by…

The FUS with faulty mitochondria – the powerhouse of the cell

The FUS with faulty mitochondria – the powerhouse of the cell

Reading Time: 3 minutes Guest researcher blog post written by Darija Šoltić. Originally from Croatia, I came to the UK to do my PhD in neuroscience, where I worked on spinal muscular atrophy, a debilitating childhood motor neuron disease (MND). Earlier this year, I joined the Ruepp group (led by Dr Marc-David Ruepp) at the UK Dementia Research Institute…

Identifying potential new diagnostic biomarkers in the blood

Reading Time: 6 minutes Guest researcher blog post about the recently published paper on the identification of potential new biomarkers in the blood, in the journal Brain Communications. Written by lead author, Dr Greig Joilin, Postdoctoral Research Fellow at the University of Sussex: Diagnosis of MND is currently a time-consuming process of elimination, causing patients and families prolonged stress…

Rapid development of the Telehealth in MND (TiM) Platform

Rapid development of the Telehealth in MND (TiM) Platform

Reading Time: 3 minutes Guest researcher blog post written by Liam Knox: My name is Liam Knox and I am a Postdoctoral Research Associate who has recently joined Dr Esther Hobson and Prof. Chris McDermott (consultant neurologists) on the Telehealth in Motor Neuron Disease, or ‘TiM’ for short, project at the Sheffield Institute for Translational Neuroscience (SITRaN).

Online tool to support CALM – Coping and Living with MND

Online tool to support CALM – Coping and Living with MND

Reading Time: 2 minutes Guest researcher blog post written by Cathryn Pinto: I am a PhD student at the University of Southampton and my PhD project (titled CALM – Coping and Living with MND) is about the experience of emotional distress and wellbeing among people with MND and their family. Cathryn’s PhD studentship is funded by the MND Association.