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Tag: MND research

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Markers of Disease Progression MND Research Models of MND Research we fund Treatments

Global MND Awareness Day- Celebrating Collaboration

21 June 202221 June 2022

Reading Time: 5 minutesEach year, the 21st of June marks Global MND Awareness Day and MND Charites and Associations across the world acknowledge the impact that MND has

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Events MND Research News

Behind the research… ENCALS 2022 Conference Highlights

17 June 202217 June 2022

Reading Time: < 1 minuteMembers of the research recently attended the 20th European Network for the Cure of Amyotrophic Lateral Sclerosis (ENCALS) meeting in Edinburgh, Scotland, on the 1-3rd of June

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DNA
Clinical Trials MND Research Treatments

VALOR Biogen’s Tofersen trial: a look at the open label extension data

10 June 202217 February 2023

Reading Time: 6 minutesUpdate 21/09/2022: The results of the VALOR trial and its open label extension were published in the New England Journal of Medicine. These results give

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32nd Symposium: Virtual Healthcare MND Research Symposium

Symposium Spotlight: Experience of a Researcher

8 June 20228 June 2022

Reading Time: 5 minutesWith planning for the 33rd International Symposium in full swing, we are back chatting to Silverio Conte, Chief of International Relations at Associazione conSLAncio Onlus,

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32nd Symposium: Virtual MND Research Models of MND

Symposium Spotlight: CRISPR- the magic behind gene editing in MND

28 April 202229 April 2022

Reading Time: 6 minutesAs part of our Symposium Spotlight series, we’re looking back on some of the research presented at the 32nd International Symposium on ALS/MND. This blog

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Clinical Trials MND Research News

12 MND clinical trial updates to keep an eye out for in 2022 – Part 2

13 April 202224 June 2022

Reading Time: 6 minutesThis year is set to be an exciting time for MND research, and we are especially hopeful that MND clinical trials will take centre stage

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Clinical Trials MND Research Treatments

12 MND clinical trial updates to keep an eye out for in 2022 – Part 1

7 April 202219 April 2022

Reading Time: 7 minutesLast month saw the two-year anniversary since the first COVID lockdown in England (the UK) which changed our lives forever – not least because of

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32nd Symposium: Virtual 32nd Symposium: Virtual Clinical Trials MND Research Research we fund Symposium Treatments

Symposium Spotlight: A closer look at IMODALS clinical trial outcomes

16 March 202216 March 2022

Reading Time: 6 minutesAs the research team are starting to get stuck into planning our next International Symposium on ALS/MND we are taking a look back at some

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32nd Symposium: Virtual Clinical Trials MND Research

What a difference a year makes: on entering the ALS research community 

9 March 20229 March 2022

Reading Time: 5 minutesThis is a guest blog written by Danielle Boyce, DPA, MPH, Executive Director, the Robert Packard Center for ALS Research and Answer ALS Research Program;

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32nd Symposium: Virtual MND Research

How technology can play a role in connecting with the people you love

22 February 202222 February 2022

Reading Time: 4 minutes“Go set the world on fire!” This is how Steve Gleason, a former professional American football player who is now living with ALS, finished his

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