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Tag: MND

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Clinical Trials MND Research News Treatments

What does the FDA approval of AMX0035 mean for the UK MND community?

30 September 202210 October 2022

Reading Time: 6 minutesOn 29th September 2022 AMX0035, a treatment for Motor Neurone Disease (MND) was approved by the Food and Drug Administration (FDA) in the United States.

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Causes and disease mechanisms MND Research News

Revisited: should routine genetic testing be considered for all cases of MND?

27 September 202226 September 2022

Reading Time: 6 minutesThe recent publication of the results from the Phase 3 Tofersen trial, an experimental gene therapy for the treatment of MND in people with a

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Causes and disease mechanisms MND Research Models of MND Research we fund

Travel disruptions: transport along neurones in MND

23 August 20222 August 2024

Reading Time: 6 minutesA newly published paper in Acta Neuropathologica Communications has shed light on the behaviour of healthy motor neurones compared to motor neurones found in MND.

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Clinical Trials MND Research

The generation of synthetic placebo data for ALS clinical trials

4 August 20224 August 2022

Reading Time: 5 minutesIn this guest blog written by Harry Bowles and Sarah Opie-Martin from King’s College London they discuss their MND research poster which was presented at

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Events MND Research

EnCouRaging the future of MND research

28 July 202228 July 2022

Reading Time: 5 minutesOn the 19-20 July 2022, the MND Association welcomed early career researchers, and people living with and affected by MND to the University of Northampton

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Events MND Research News Research we fund

ENCALS 2022 highlights: award-winning research

7 July 20227 July 2022

Reading Time: 4 minutesEvery year at the European Network to Cure ALS (ENCALS) meeting, the Young Investigator award is presented to the brightest and best young scientist in

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Markers of Disease Progression MND Research Research we fund

Delving deeper into neurofilament light chain

24 June 20224 April 2025

Reading Time: 5 minutesThere is a desperate need for a biomarker for MND for both the diagnosis and demonstration of a biological effect as a result of a

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Markers of Disease Progression MND Research Models of MND Research we fund Treatments

Global MND Awareness Day- Celebrating Collaboration

21 June 202221 June 2022

Reading Time: 5 minutesEach year, the 21st of June marks Global MND Awareness Day and MND Charites and Associations across the world acknowledge the impact that MND has

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Events MND Research News

Behind the research… ENCALS 2022 Conference Highlights

17 June 202217 June 2022

Reading Time: < 1 minuteMembers of the research recently attended the 20th European Network for the Cure of Amyotrophic Lateral Sclerosis (ENCALS) meeting in Edinburgh, Scotland, on the 1-3rd of June

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DNA
Clinical Trials MND Research Treatments

VALOR Biogen’s Tofersen trial: a look at the open label extension data

10 June 202217 February 2023

Reading Time: 6 minutesUpdate 21/09/2022: The results of the VALOR trial and its open label extension were published in the New England Journal of Medicine. These results give

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