Reading Time: 6 minutesEvery year the Patient Fellows Symposium Programme helps people living with MND, from all over the world, to participate in the International Symposium on ALS/MND. The is the largest annual gathering of MND researchers and healthcare professionals dedicated to MND research in the global calendar. Attending provides, those who the research will benefit, an opportunity to have a firsthand view of the most recent and promising research being undertaken by researchers across the world.
Author: Research Information Team
The MND Association’s vision is a world free from MND. Realising this vision means investing more in research, further developing partnerships with the research community, funding bodies and industry, while ensuring that advances in understanding and treating MND are communicated as quickly and effectively as possible.

Reading Time: 6 minutesMND is a complex disease, and the causes are still not fully understood. Researchers all around the world are working tirelessly on different theories to

Reading Time: 7 minutesOn 25th April 2023 Tofersen (now known as Qalsody in the US), a treatment for SOD1 MND was approved by the Food and Drug Administration

Reading Time: 4 minutesIt is well known that more men are diagnosed with MND than women. It is not altogether clear exactly why this is the case and

Reading Time: 6 minutesRecent research, led by Professor Guillaume Hautbergue at the University of Sheffield, has found a potential new method of preventing nerve cell death in the

Reading Time: 4 minutesA recent paper published in Brain Communications has identified several lipid (fat-like) molecules that are elevated in MND, specifically amyotrophic lateral sclerosis (ALS) which is

Reading Time: 4 minutesIn 2021, the MND Association, the My Name’5 Doddie Foundation and medical research charity LifeArc established a joint fund – the Motor Neuron Disease Translational

Conversations with…4 international MND researchers
Reading Time: 3 minutesLast week at the 33rd International Symposium on ALS/MND, we heard some exciting updates on a wide range of research happening all over the world. The pace of ALS/MND research has drastically increased over recent years and we now have a better understanding about the underlying biology of the disease which is crucial to being able to identify new potential drug targets.

Reading Time: 6 minutesOver the last year ALS/MND clinical trials have taken centre stage, with more trials than ever opening for recruitment in the UK, the news of promising results from some trials and the approval of drugs by some regulatory authorities. With the year coming to an end, we thought we would roundup some recent clinical trial updates that were presented at the 33rd International Symposium on ALS/MND.