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MND Research Blog

Taking you behind the scenes of MND research

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New Research Sheds Light on Life with Tracheostomy Ventilation

8 October 20268 October 2026 Gen

From incredible fundraising to life-changing research: the impact of Sir Kevin’s extraordinary support.

29 September 20261 October 2026 Gen
Genetics

FUS-MND: The story so far…

15 September 202615 September 2026 Kiran

Meet Beth: Introducing our new Research Engagement and Involvement Manager 

20 August 202620 August 2026 Beth

Meet Katie, the newest member of the Research Team

4 August 202626 August 2026 Katie

MND EnCouRage UK 2026: celebrating five years of supporting early career researchers

17 July 202617 July 2026 Libby
MND Research Symposium

Changing the way we think about the causes of MND

12 December 201511 August 2026

Reading Time: 3 minutesAdult onset condition, those with genetic mutations associated with the disease don’t get it until they’re adults, starts in one place and then it spreads,

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MND Research News Research we fund

Season of mists and mellow fruitfulness…..and prizes….

30 November 201528 April 2022

Reading Time: 3 minutesThe fantastic news that Patrick Joyce and his co-inventors have won the 2015 Hackaday Prize for their ‘Eyedrivomatic’ invention is one of a number of research

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Get involved with research Healthcare MND Research News Research we fund

Heading in the right direction: Sheffield Support Snood update

23 November 201511 August 2026

Reading Time: 3 minutesUpdate (February 2017): All sites are now closed and not recruiting for participants. If you would like to be added to a waiting list for

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Get involved with research MND Research

Using video messages to help leave a digital legacy

6 November 201511 August 2026

Reading Time: 3 minutesIn a guest blog, PhD student Oliver Clabburn tells us about his family’s experience of MND and his research interests. He also explains how you

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Healthcare MND Research News Research we fund

Palliative Care Research – new funding available

27 October 201511 August 2026

Reading Time: 2 minutesToday an exciting announcement was made about three organisations working together to increase our knowledge on the best way to provide palliative and end of

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MND Research News

How MND research happens: Manchester Science Festival

22 October 201511 August 2026

Reading Time: 3 minutesOn Tuesday, we posted news of the two MND Awareness engagement events taking place in Manchester during the Manchester Science Festival (on 25 and 31

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News

Movement Making in Manchester

20 October 201511 August 2026

Reading Time: 3 minutesManchester this half term will be the showcase for two MND awareness events we’ve been working on with Dr Emma Hodson-Tole and Dr Rickie Patani.

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Healthcare Research we fund

Are there differences between FTD alone and FTD-MND?

10 October 201511 August 2026

Reading Time: 3 minutesThe last of our FTD awareness week blog posts is focussing on a healthcare project looking into FTD (frontotemporal dementia) and FTD-MND (FTD when combined with

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Causes and disease mechanisms MND Research Research we fund

Hunting for clues about the genetic causes of FTD and MND

9 October 201511 August 2026

Reading Time: 3 minutesYesterday we published an introductory blog on frontotemporal dementia (FTD) and described how it is sometimes found in combination with MND. Today we are looking

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Research we fund

Cognitive Change and MND

8 October 201511 August 2026

Reading Time: 3 minutesIn addition to the muscle weakness and wasting, MND also presents with non-motor symptoms, one of the most common being cognitive change. Research has already

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