Reading Time: 3 minutes My name is Charlotte and I am a specialist physiotherapist who has worked within the field of MND and neuromuscular disease for many years. Prior to starting my PhD, I worked as the lead physiotherapist on the Neuromuscular Complex Care Centre (NMCCC) at the National Hospital for Neurology and Neurosurgery, part of UCL centre for neuromuscular diseases in London.
Reading Time: 3 minutes My name is Sara Tacconelli and I grew up in a small town in Abruzzo, Italy, and I was raised in a nurturing environment, surrounded by love and affection from my family and friends. I always had a passion for science and as I grew older, a strong desire to dedicate my life to a meaningful cause emerged within me- a desire to somehow make a difference in the lives of others.
Reading Time: 12 minutes Despite decades of research, we still do not fully understand why some people get MND, but studies in cell and animal models of the disease
Reading Time: 4 minutes Last month we hosted the second MND EnCouRage UK event for early career researchers (ECRs) which aims to support them to continue working in the
Reading Time: 7 minutes Clinical trials are vital in the hunt for effective treatments of motor neurone disease. They provide the evidence needed to determine whether a drug is
Highlights from MND EnCouRage UK 2023
Reading Time: 5 minutes Hi everyone! My name’s Katie and I recently joined the Association as a Supporter Information Officer. My role offers me a unique perspective as I
Reading Time: 5 minutes The MND clinical trial landscape has grown vastly over the last decade and this has led to increased opportunities for people with MND to take
Reading Time: 6 minutes To fight motor neurone disease, we need a steady stream of enthusiastic and passionate scientists who can bring new ideas and push boundaries. Often, we
Reading Time: 6 minutes Every year the Patient Fellows Symposium Programme helps people living with MND, from all over the world, to participate in the International Symposium on ALS/MND. The is the largest annual gathering of MND researchers and healthcare professionals dedicated to MND research in the global calendar. Attending provides, those who the research will benefit, an opportunity to have a firsthand view of the most recent and promising research being undertaken by researchers across the world.
Reading Time: 6 minutes MND is a very complex disease, and in the UK there is still only one approved treatment so the need for more effective treatments remains