MND Engage – collaboration, engagement and communication

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Martina, Lydia, Mandy, Nick and Kirsten from the MND Association

MND Engage was a one-day collaborative event, bringing together MND researchers and people affected by MND. The inaugural event was held at the Francis Crick Institute in London on 23 July. The event, organised by researchers Jasmine Harley, Giulia Tyzack and Helen Divine, and supported by the MND Association’s Research Development and Communications teams, brought together MND researchers from several UK laboratories working on MND in order to explore ways in which public engagement in MND research could be improved.

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Giving voice to people living with MND: Voice Banking

Phillipa Rewaj, Rebecca Devon and Shuna Colville from the Euan MacDonald Centre for MND Research, University of Edinburgh, help us celebrate Global MND Awareness day. This year’s theme is ‘voice’ and here the researchers provide us with an update on their pioneering ‘voicebanking project’, which is part-funded by the MND Association.

 

Ring ring….ring ring….

“Hello?”

“Hi there, it’s me.”

“Oh hello dear, how nice to hear from you!”

 

Sound familiar? How many of your friends or family could you recognise from a few words of their voice? Two, five, ten or more?

It may have never previously occurred to you, but our voices are as unique as our face shape, our walk and even our eyes. A person’s voice is an essential component of his or her identity.

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