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A Summary of the news from the 23rd International symposium on ALS/MND

Reading Time: 2 minutes Each year we proudly organise the International Symposium on ALS/MND, and this year was a record breaker! The symposium was held in Chicago where over 900 clinicians, scientists and healthcare professionals attended the three-day event. With 86 international speakers and over 300 posters we managed to write about it all in just over 5,000 words in our daily articles on this blog. Here’s a brief guide…

Reflections on the poster session

Reading Time: 4 minutes In Chicago, it’s the beginning of the third day of the International Symposium on ALS/MND. I feel that I’ve become almost institutionalised: I get up, have breakfast and head down to the ‘Ballroom’ floor of the hotel. After saying a few hellos, I’ll head to my chosen session, settle down, get my notepad out and…

The clinical trials session

Reading Time: 3 minutes A very much ‘must report on’ session of the 23rd International Symposium on ALS/MND was the clinical trials and trial design session. There are many reasons that make this an interesting session – perhaps the most eagerly anticipated were the presentations on the NP001 study and the results of the stem cell safety trial: NP001…

A prize-winning story worth repeating

Reading Time: 2 minutes Many congratulations to Rosa Rademakers from Mayo Clinic Florida USA, winner of this year’s Paulo Gontijo Young Investigator award. She won the award for her work on co-discovering the gene defect in C9orf72. As part of her prize (in addition to a medal and a cheque to continue her work) she gave an overview of…

Nature, nurture, genetics and / or chance – what causes MND?

Reading Time: 3 minutes Trying to understand what the different underlying factors are towards developing MND has always been a goal for ALS research. MND Association funded researcher and clinician Professor Ammar Al-Chalabi from King’s College London, gave a talk on this topic at the opening session of the 23rd International Symposium on ALS/MND in Chicago. A record number of…

Share nicely!

Reading Time: 3 minutes The phrase ‘Share nicely’ is one that I associate with children sharing their toys, sweets and perhaps even Wii time. However, it works well in a research context too. A steady momentum has been building of new ways to share, so I wanted to write a post to highlight them. For the last 23 years…