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New Research Sheds Light on Life with Tracheostomy Ventilation

8 October 20268 October 2026 Gen

From incredible fundraising to life-changing research: the impact of Sir Kevin’s extraordinary support.

29 September 20261 October 2026 Gen
Genetics

FUS-MND: The story so far…

15 September 202615 September 2026 Kiran

Meet Beth: Introducing our new Research Engagement and Involvement Manager 

20 August 202620 August 2026 Beth

Meet Katie, the newest member of the Research Team

4 August 202626 August 2026 Katie

MND EnCouRage UK 2026: celebrating five years of supporting early career researchers

17 July 202617 July 2026 Libby
DNA
Clinical Trials MND Research Treatments

VALOR Biogen’s Tofersen trial: a look at the open label extension data

10 June 202217 February 2023

Reading Time: 6 minutesUpdate 21/09/2022: The results of the VALOR trial and its open label extension were published in the New England Journal of Medicine. These results give

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32nd Symposium: Virtual Healthcare MND Research Symposium

Symposium Spotlight: Experience of a Researcher

8 June 202211 August 2026

Reading Time: 5 minutesWith planning for the 33rd International Symposium in full swing, we are back chatting to Silverio Conte, Chief of International Relations at Associazione conSLAncio Onlus,

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32nd Symposium: Virtual MND Research Models of MND

Symposium Spotlight: CRISPR- the magic behind gene editing in MND

28 April 202229 April 2022

Reading Time: 6 minutesAs part of our Symposium Spotlight series, we’re looking back on some of the research presented at the 32nd International Symposium on ALS/MND. This blog

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Clinical Trials MND Research News

12 MND clinical trial updates to keep an eye out for in 2022 – Part 2

13 April 202224 June 2022

Reading Time: 6 minutesThis year is set to be an exciting time for MND research, and we are especially hopeful that MND clinical trials will take centre stage

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Clinical Trials MND Research Treatments

12 MND clinical trial updates to keep an eye out for in 2022 – Part 1

7 April 202219 April 2022

Reading Time: 7 minutesLast month saw the two-year anniversary since the first COVID lockdown in England (the UK) which changed our lives forever – not least because of

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Markers of Disease Progression MND Research

A ‘wee molecule’: the tiny urinary biomarker neopterin and its role in MND progression

1 April 202211 August 2026

Reading Time: 6 minutesMy name is Stephanie Shepheard, and I am a Research Associate in the Motor Neuron Disease & Neurotrophic Research Laboratory (MND&NR Lab), Flinders Health &

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32nd Symposium: Virtual Markers of Disease Progression MND Research

Symposium Spotlight: Biomarkers in MND – improving drug development and clinical trial design

30 March 202211 August 2026

Reading Time: 4 minutesDiagnosing disease faster, accurately predicting disease progression, assessing the ability of a new drug to reach its target – I think we’d all agree that

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32nd Symposium: Virtual 32nd Symposium: Virtual Clinical Trials MND Research Research we fund Symposium Treatments

Symposium Spotlight: A closer look at IMODALS clinical trial outcomes

16 March 202216 March 2022

Reading Time: 6 minutesAs the research team are starting to get stuck into planning our next International Symposium on ALS/MND we are taking a look back at some

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32nd Symposium: Virtual Clinical Trials MND Research

What a difference a year makes: on entering the ALS research community 

9 March 202211 August 2026

Reading Time: 5 minutesThis is a guest blog written by Danielle Boyce, DPA, MPH, Executive Director, the Robert Packard Center for ALS Research and Answer ALS Research Program;

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Causes and disease mechanisms MND Research Models of MND News

New discovery reveals why mysterious genetic variant impacts ALS severity

24 February 202211 August 2026

Reading Time: 4 minutesMy name is Oscar Wilkins and I am a PhD student working with Professors Pietro Fratta (recipient of a MND Association Research Fellowship) and Jernej

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