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ALSUntangled – untangling the mysteries of alternative and off-label treatments

ALSUntangled – untangling the mysteries of alternative and off-label treatments

Reading Time: 5 minutes There are literally thousands of websites on the internet that make claims about amazing alternative or off-label treatments (AOTs) and even cures for MND but with little or no scientific evidence to back these claims up. This presents a real problem for people living with the disease who may want to try them. Are they…

Twitter and MND

Reading Time: 2 minutes With over 140 million active users Twitter has grown up a lot since it arrived in 2006. This means that Twitter can be an extremely powerful tool for engaging, influencing and reaching out to a wide range of audiences across the world. Twitter is a social network (like Facebook and Google+) which allows you to…

Blue-green algae called Spirulina investigated by ALSUntangled

Reading Time: 2 minutes An unproven treatment called ‘Spirulina’, which is a type of blue-green algae, has recently been investigated by ALSUntangled*. They concluded that there is no evidence that Spirulina is effective for treating MND. Their findings also suggest that it could be toxic to people with MND. In their investigative paper, which is free to download and…

Stem cell conference part six: unregulated treatments

Reading Time: 2 minutes The room was crowded at 8am for the first presentation of day two, from Dr Doug Sipp (RIKEN Institute, Japan) on ‘Unregulated ALS/MND treatments and public education’.  Dr Sipp provided an insightful and entertaining overview of the plethora of self-styled stem cell ‘clinics’ and the tactics they employ to attract business. During the talk, the song Snake Oil, by…

Stowe/ Morales treatments are investigated by ALSUntangled

Reading Time: 2 minutes ALSUntangled have debunked yet another unproven treatment advertised on the internet. Publishing these results in a reputable journal is of the utmost importance as it means that their findings can be read and be trusted as a reliable source of information. The unproven treatment that the group of clinician-researchers investigated was the Stowe/Morales treatment protocol…

X-cell stem cell centre has been investigated by ALS Untangled

Reading Time: 2 minutes With the internet providing an expanse of ‘quackery’ jumbled up with facts, it’s becoming increasingly difficult for anybody to know what source of information can be trusted. This issue is especially apparent to us when we add unproven treatments into the mix. An unproven treatment is, quite literally, a treatment that has no reliable proof for…