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30 chapters of MND research

Reading Time: 2 minutes During MND Awareness Month (1-30 June), we will be publishing a new post each day. Our ‘Project a Day’ series will celebrate the whole range of areas in which the MND Association funds research. Thanks to the generous donations of our supporters, we currently fund over 80 research projects, across five themes: Causes: These projects aim…

Heading in the right direction: Sheffield Support Snood update

Reading Time: 3 minutes Update (February 2017): All sites are now closed and not recruiting for participants. If you would like to be added to a waiting list for the Sheffield Support Snood, please contact Lise Sproson. We are funding, together with the NIHR i4i (National Institute for Heath Research invention for innovation) programme, a research team in Sheffield who have developed a new type…

Are there differences between FTD alone and FTD-MND?

Reading Time: 3 minutes The last of our FTD awareness week blog posts is focussing on a healthcare project looking into FTD (frontotemporal dementia) and FTD-MND (FTD when combined with MND). The project began last year and is being part-funded by us. Professor Julie Snowden and PhD student Jennie Adams at the Cerebral Function Unit in Salford (University of Manchester)…

Hunting for clues about the genetic causes of FTD and MND

Reading Time: 3 minutes Yesterday we published an introductory blog on frontotemporal dementia (FTD) and described how it is sometimes found in combination with MND. Today we are looking at a biomedical project on FTD and MND that we are funding. The project Dr Olaf Ansorge and Professor Kevin Talbot of Oxford University are leading a biomedical project aimed…

Withdrawing ventilation support at the request of the patient: the ethical, moral and legal issues

Reading Time: 3 minutes Motor neurone disease (MND) can cause weakness in the chest muscles involved in breathing. This leads to shortness of breath and symptoms including disturbed sleep and headaches. Ventilation support allows a person to breathe more efficiently and can also extend survival. The MND Association has funded research into respiratory management and ventilation support for people living…