Reading Time: 2 minutes Today is world Rare Disease Day, so it’s an appropriate time to raise awareness of ALL rare diseases, including motor neurone disease. There are between 6,000 and 8,000 rare diseases, but what makes a ‘rare disease’? A rare disease is defined by the European Union as one that affects less than 5 in 10,000 of…
Reading Time: 2 minutes We’re pleased to announce that Dr Martin Turner has been awarded with the European Network for the Cure of ALS (ENCALS) Young Investigators Award 2012. Dr Turner was awarded with the MRC/ MND Association Lady Edith Wolfson Clinical Research Fellowship in 2008 for his study to identify biomarkers in MND (called BioMOx). Since then, Dr…
Reading Time: < 1 minute MND researchers from around the world who are hoping to present their work at this year’s International Symposium on ALS/MND are (we hope!) preparing to submit to us brief summaries of their proposed presentations. These summaries, known as abstracts, have been trickling in since March. Based on the form of earlier years, the trickle will…
Reading Time: < 1 minute MND research is accelerating at an astonishing pace, but what does it mean to you? We’re interested in what you have to say and we’d love to know your three words that sum up what you feel about MND research. Once you’ve submitted your answers, we’ll update the word cloud (created using wordle) below. Please leave us a…
