Reading Time: 3 minutes We were delighted to be invited to take part in ‘Star Cells’, a science-inspired performance art project in support of the Motor Neurone Disease Association, one of the events held last week to mark Global MND Awareness Day on 21 June. Inspired by the exciting and ground-breaking research into neuroscience taking place at the Francis…
Reading Time: 5 minutes On top of all the sharing of research and networking, the International Symposium is a time to celebrate the huge achievements of individuals/teams that contribute to the ALS/MND community. There are too many outstanding and dedicated individuals to mention but some are recognised through several awards. Here we present the awards and the winners of…
Reading Time: 5 minutes It’s been over a month since the announcement by the FDA of their decision to licence edaravone / Radicava for people with MND in the USA. The speed of the FDA’s decision took the drug company MT Pharma and the MND research community by suprise. It is encouraging that edaravone has been licenced to treat…
Reading Time: 3 minutes 21 June – MND Awareness Day Each year, the MND Association dedicates the month of June to raising MND awareness. This year, we focus on the eyes – in most people with MND the only part of their body they can still move and the only way left for them to communicate. Alongside the Association-wide…
Reading Time: 4 minutes Today we announced the results of an exciting new funding partnership with Marie Curie. Together we will be co-funding three research grants that help to answer some questions that people with MND identified as a priority for end of life care research. This is the first time that the MND Association and Marie Curie have…
Reading Time: 2 minutes Today marks the beginning of the next year in MND research around the world, or at least it certainly feels like that! It is the first day of the three day, international MND research conference that the MND Association of England, Wales and Northern Ireland is immensely proud to organise.
Reading Time: 3 minutes On Tuesday, we posted news of the two MND Awareness engagement events taking place in Manchester during the Manchester Science Festival (on 25 and 31 October). Both activities have been developed to try and translate to a wide audience the cycle scientific investigation goes through. Here in a second guest blog for us Dr Emma…
Reading Time: 3 minutes In addition to the muscle weakness and wasting, MND also presents with non-motor symptoms, one of the most common being cognitive change. Research has already shown that changes can occur to the nerve cells in the frontal and temporal lobe areas of the brain. These are the two areas which are responsible for controlling thinking, reasoning…
Reading Time: 3 minutes Motor neurone disease (MND) can cause weakness in the chest muscles involved in breathing. This leads to shortness of breath and symptoms including disturbed sleep and headaches. Ventilation support allows a person to breathe more efficiently and can also extend survival. The MND Association has funded research into respiratory management and ventilation support for people living…
Reading Time: 3 minutes A new study published yesterday in the Journal of Neurology, Neurosurgery and Psychiatry (JNNP) highlights the link between increased exposure to formaldehyde and an increased risk of developing MND. The study in the USA was conducted by Andrea Roberts and colleagues at the Department of Social and Behavioural Sciences at Harvard. They investigated whether a person’s exposure…
