orphan drug

An orphan drug is a pharmaceutical agent developed to treat medical conditions which, because they are so rare, would not be profitable to produce without government assistance. The conditions are referred to as orphan diseases.

I work as a Senior Research Officer within the MND Association to communicate the latest updates in MND research across our platforms. Additionally, I manage the digital platforms and communications for the International Symposium on ALS/MND. I graduated with a master's degree in Neuroscience from Cardiff University in 2023. I have previously supported the awareness of Fragile X syndrome within the UK.