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Genetics

FUS-MND: The story so far…

15 September 202615 September 2026 Kiran

Meet Beth: Introducing our new Research Engagement and Involvement Manager 

20 August 202620 August 2026 Beth

Meet Katie, the newest member of the Research Team

4 August 202626 August 2026 Katie

MND EnCouRage UK 2026: celebrating five years of supporting early career researchers

17 July 202617 July 2026 Libby

FaTHoM day 2026: Supporting families affected by inherited MND and FTD       

3 July 202630 July 2026 Eleanor

Clinical trials to look out for in 2026

9 April 20265 June 2026 Eleanor
36th Symposium: San Diego Causes and disease mechanisms Events Markers of Disease Progression MND Research Models of MND News Symposium

Bringing the community together for the 36th International Symposium on ALS/MND

12 December 202511 August 2026

Reading Time: 4 minutesThe International Symposium on ALS/MND has closed its doors once again after three insightful, inspiring and hopeful days! After being postponed in 2020 due to the COVID-19 pandemic, we finally made

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Symposium Live

That’s a wrap on the 36th International Symposium on ALS/MND! 

8 December 202511 August 2026

Reading Time: 2 minutesThe International Symposium on ALS/MND has closed its doors after three insightful, inspiring and hopeful days!  This year’s event in San Diego really has showcased the breadth of research happening around the

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Symposium Live

Developing a new gene therapy

7 December 202511 August 2026

Reading Time: < 1 minuteIn the session on therapeutic strategies and treatment approaches, we’ve heard seven talks about new therapies being developed and new ways to find possible treatments.  One talk was

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Symposium Live

Searching for early signs of MND 

7 December 202511 August 2026

Reading Time: 2 minutesThe Preclinical and Prodromal ALS session focused on early diagnosis of MND and the use of biomarkers to reveal early signs of the disease. A key approach to this type of research is to use a

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Symposium Live

From blood and spinal fluid to skin – insights into different biomarkers for MND 

6 December 202511 August 2026

Reading Time: 2 minutesFollowing the mid-morning break, which was filled with the smell of freshly brewed coffee, we attended a session on biomarkers. Biomarkers are measurable indicators of biological changes that

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Symposium Live

Thinking and behaviour changes in MND

6 December 202511 August 2026

Reading Time: < 1 minuteWe’ve just heard some really interesting talks in the Cognitive and Psychological Assessment and Support session.  Professor Sharon Abrahams opened, and explained that around half of people with MND experience

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Symposium Live

Exploring new treatments through clinical trials 

6 December 202511 August 2026

Reading Time: < 1 minuteThe clinical trials session is always the most anticipated and well attended session of the Symposium. This year was no different!   Professor Merit Cudkowicz shared updates on a drug called Prime C.

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Symposium Live

Estimating disease risk in families carrying changes in C9orf72 gene  

5 December 202511 August 2026

Reading Time: 2 minutesThis morning kicked off with a session about genes and phenotypes. The six talks focused on trends in the development of MND in different groups of people and

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Symposium Live

Mini Brains and Space: Unlocking the Secrets of Brain Development and Aging 

5 December 202511 August 2026

Reading Time: 2 minutesIn this year’s opening session of the International Symposium on ALS/MND, we’ve just heard the Stephen Hawking Memorial Lecture. The lecture brings expertise from outside

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36th Symposium: San Diego Causes and disease mechanisms Markers of Disease Progression MND Research Models of MND Symposium Treatments

Finding new treatments for MND

27 November 202511 August 2026

Reading Time: 6 minutesThe global MND research community is once again preparing for one of the most anticipated events of the year—the 36th International Symposium on ALS/MND. This annual

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