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Revisited: should routine genetic testing be considered for all cases of MND?

Revisited: should routine genetic testing be considered for all cases of MND?

Reading Time: 6 minutes The recent publication of the results from the Phase 3 Tofersen trial, an experimental gene therapy for the treatment of MND in people with a change in the gene that instructs the SOD1 protein, has provided increasing confidence that Tofersen is having a beneficial effect in people living with SOD1 MND. This and the development…

Heading in the right direction: Sheffield Support Snood update

Reading Time: 3 minutes Update (February 2017): All sites are now closed and not recruiting for participants. If you would like to be added to a waiting list for the Sheffield Support Snood, please contact Lise Sproson. We are funding, together with the NIHR i4i (National Institute for Heath Research invention for innovation) programme, a research team in Sheffield who have developed a new type…

Measuring the nerve impulse

Reading Time: 4 minutes Researchers identify that loss of nerve signalling may be an early sign of MND Published in Nature Communications on 12 January 2015, Association-funded PhD student Anna-Claire Devlin, based at the University of St Andrews, has identified that loss of nerve signalling may be an early sign of MND. Under the leadership of Dr Gareth Miles and…

Lessons learnt from cancer – identifying the causes of MND

Reading Time: 4 minutes Published in Lancet Neurology on 7 October 2014, Association-funded researcher, Prof Ammar Al-Chalabi based at King’s College London, and an international team of researchers have used a new approach to study the causes of MND. Under the leadership of Prof Neil Pearce, based at the London School of Hygiene and Tropical Medicine, researchers have used a mathematical…

Very ‘ice’ research

Reading Time: 3 minutes The ALS #icebucketchallenge, which started in America, has now well and truly hit the UK! The social media craze has seen thousands of people getting involved in raising awareness of ‘ALS’( the most common form of MND), and funds for the Association, by placing a bucket of ice-cold water over their heads. But what happens…

Toxic proteins may cause motor neurones to die in C9orf72 MND

Reading Time: 4 minutes MND Association and Alzheimer’s Research UK-funded researchers from University College London have identified that toxic proteins may cause motor neurones to die in C9orf72 MND and frontotemporal dementia. Published open access in the journal Science on Thursday 7 August, this research explains more about one of the most common forms of inherited MND.